April E
Member
- Joined
- May 18, 2018
- Messages
- 25
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- CO
- City
- Longmont
Hello...
I posted here a year ago, but that thread is closed. I would like to post a follow up if i may.
A year ago I had a negative physical exam and a normal EMG, as well as a "subclinical" MRI of my brain.
In the meantime, I've had a significant decrease in power and endurance. I was always the one to set the pace, with my purposeful stride and my 36 inch inseam. Now I can't keep up with the pokiest of people. I went to Disney Land with my grandkids, and my son had to physically lift me out of some of the rides. The walking was brutal. It's a profoundly disturbing sense of something very wrong in my universe. I continue with the cramps and twitching as before, but now i have the added pleasures of stiffness and pain, especially in my legs. I kept trying to convince myself that I'm just getting older, etc., after all, I had the negative neuro exam and the golden ticket of a normal EMG.
I just had my one year follow up, and I now have clinical weakness in my right leg and assymetrical reflexes in my knees. The left one is hyper-reflexive when compared to the right. I think he mentioned something about other reflexes, but I sort of zoned out while trying to absorb the words "abnormal exam".
I have orders for a stack of labs, for strange things (syphilis?), a MRI of my lumbar spine and cervical spine, and an EMG and NCS. The EMG/NCS is scheduled for August 1st.
I know you guys can't diagnose me, and I know I just have to live my life (New episode Stranger Things tomorrow...YAY!). I'm just wondering how worried I should be?
Great big thank yous to anyone who takes the time to read this and to respond...
April
I posted here a year ago, but that thread is closed. I would like to post a follow up if i may.
A year ago I had a negative physical exam and a normal EMG, as well as a "subclinical" MRI of my brain.
In the meantime, I've had a significant decrease in power and endurance. I was always the one to set the pace, with my purposeful stride and my 36 inch inseam. Now I can't keep up with the pokiest of people. I went to Disney Land with my grandkids, and my son had to physically lift me out of some of the rides. The walking was brutal. It's a profoundly disturbing sense of something very wrong in my universe. I continue with the cramps and twitching as before, but now i have the added pleasures of stiffness and pain, especially in my legs. I kept trying to convince myself that I'm just getting older, etc., after all, I had the negative neuro exam and the golden ticket of a normal EMG.
I just had my one year follow up, and I now have clinical weakness in my right leg and assymetrical reflexes in my knees. The left one is hyper-reflexive when compared to the right. I think he mentioned something about other reflexes, but I sort of zoned out while trying to absorb the words "abnormal exam".
I have orders for a stack of labs, for strange things (syphilis?), a MRI of my lumbar spine and cervical spine, and an EMG and NCS. The EMG/NCS is scheduled for August 1st.
I know you guys can't diagnose me, and I know I just have to live my life (New episode Stranger Things tomorrow...YAY!). I'm just wondering how worried I should be?
Great big thank yous to anyone who takes the time to read this and to respond...
April