help1127
Active member
- Joined
- Nov 19, 2013
- Messages
- 95
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- FL
- City
- Orlando
Hello all,
I need opinions on some troublesome clinical findings plus emg results.
As many of you know I have been seeing and following up with Neuromuscular specialists here in Florida for a few years now. While I still don't have any firm diagnosis I do have an abnormal clinical exam plus findings on my EMG.
I had a follow up visit with my Neurologist today and my reflexes are still very brisk, plus I have a few beats of clonus , positive Hoffman and mild spasticity all of this is more pronounced on my left side. As for my emg he found a lot of faciculations on my right calf and right forearm as those where the only two areas tested.
After the exam my neurologist explained that after 4 years of seeing me he cant find any weakness. That if I had ALS he would have seen some progression at this point but doesnt see any other than some minor changes in my clinical time to time.
I feel that it's only weakness keeping him from giving me a diagnosis but I'm truly frustrated that I have all these abnormal findings in my clinical but he says it doesn't worry him as he has never seen any weakness.
Has anyone waited this long with a Neuromuscular specialist following them to get a ALS diagnosis? I know if it is ALS there is nothing I can do but I'd like some type of a explanation at this point other than " I really dont know whats causing your abnormal findings"
Hope this post doesn't upset anyone.
I need opinions on some troublesome clinical findings plus emg results.
As many of you know I have been seeing and following up with Neuromuscular specialists here in Florida for a few years now. While I still don't have any firm diagnosis I do have an abnormal clinical exam plus findings on my EMG.
I had a follow up visit with my Neurologist today and my reflexes are still very brisk, plus I have a few beats of clonus , positive Hoffman and mild spasticity all of this is more pronounced on my left side. As for my emg he found a lot of faciculations on my right calf and right forearm as those where the only two areas tested.
After the exam my neurologist explained that after 4 years of seeing me he cant find any weakness. That if I had ALS he would have seen some progression at this point but doesnt see any other than some minor changes in my clinical time to time.
I feel that it's only weakness keeping him from giving me a diagnosis but I'm truly frustrated that I have all these abnormal findings in my clinical but he says it doesn't worry him as he has never seen any weakness.
Has anyone waited this long with a Neuromuscular specialist following them to get a ALS diagnosis? I know if it is ALS there is nothing I can do but I'd like some type of a explanation at this point other than " I really dont know whats causing your abnormal findings"
Hope this post doesn't upset anyone.