karla r
Distinguished member
- Joined
- Apr 30, 2015
- Messages
- 148
- Reason
- Learn about ALS
- Country
- US
- State
- South Carolina
- City
- roebuck
Neurologist visit, with the new neurologist today. He pretty much poked and prodded every thing from my eyelids to my pinky toes. Took enough blood told hydrate me (as in 13 tubes, where 1 vein quit giving and so they moved to another one to finish). Wants me back tomorrow as a rush for another emg and ncs. He intends to do the entire body. From tongue to eyelids, to arms and legs, ect. I mentioned that I had only had arms and legs done. But he said he noted atrophy and weakness in face, neck, and back. So he is putting a rush on the blood and on the tests. He saidthat although ALS is most likely the cause, he wants to rule out some very rare adult onset of something I didn't quite catch, that usually starts in infancy or early childhood, and mg. I think that one was already ruled out by the other neurologist, but he is double checking. I think he is doing a lot more blood tests than I've had, cause I have never had them draw 13 tubes at one time before. Also had to go get the actual images on disc for my mris and cats from the last 3 years for him to see. The reports were not good enough for him. Hoping it turns up something better than ALS. Will take all the prayers you guys have the energy to send my way. Thank you!