- Jun 6, 2019
Hi, Ken!Christine, good luck with the visit with the neuro-psychiatrist today. I'm also glad to know that I'm not alone in dealing with the uncertainty of slow progression. And Karen your advice is well taken. I have already taken care of a lot of the advanced directive/financial planning/voice banking stuff. It's the really big decisions, like do we sell the house, that I am unsure of.
How have you been lately? Holding strong, I'm hoping!
Question for you and/or anyone. So, as you know I went to see a neuropsychiatrist for some testing as I felt I dropped about 60 IQ points and my memory (especially for me was becoming pretty bad). I took the test which went from about 8:15 until about 3PM. I was asked a myriad of questions and when I realized how bad my memory was I broke down several times during the test - it confirmed that 'something'' was wrong with how my brain was (or wasn't!) working. It is quite scary. I don't meet for the results until this coming Wednesday.
Has anyone else had a test like this and felt the same way? OR has anyone with ALS experienced 'bad' short term memory issues?
Thanks in advance!
~I hope everyone is doing well!