curley
New member
- Joined
- Apr 25, 2013
- Messages
- 7
- Reason
- Learn about ALS
- Country
- US
- State
- pa
- City
- philly
First, thank you in advance for your support and replies in what has been a very stressful & concerning time for me. A brief background of my situation, I am a 40 y/o dad of 2 beautiful little girls. Started expiriencing the following about 2-3 months.
Physical activities running, gym activities I would get an initial burning sensation along with weak muscle fatigue afterwards (shoulders and quads). However, I have not been doing any of these for several weeks. Ran last week and my legs felt very heavy afterwards and was very sore for 3-4 days. I know I should experience these when not doing this for several weeks but not for that extended period of time. Even holding the cell phone to my head I get pain / tired after several minutes (both shoulders).
No problems going up/down stairs, tripping, lifting objects or opening things.
My right arm has had elbow pain for several weeks and the bottom of my forearm around elbow is painful and very weak when I do/lift certain items in a certain position (forearm pain was there long before the elbow issue).
Twitching started in both arms but has pretty much centralized in the right arm (bicep & forearm). Although I do get twitches in the shoulder as well. Still get daily twitches in my left arm (same areas) but not as frequent.
Right hand feels a bit tired some times and maybe a bit weaker than the right.
I can still lift very heavy and carry items without a problem (like a 2 & 3 y/o) and curl 30 lb dumbells for several sets (10 or more each time).
Other weird issues have happened as well but I will not get into that.
Saw my GP who referred me to a neuro.
I had an EMG done (neuro did my left side only , right side was the worse side though). Mild to modrate carpel tunnel in both hands was noted. He said you passed a big test today, but wanted to run a few more reports to rule out other things (MS). I got an MRI of the brain and cervical spine (all good). Although the MRI showed 3 disc herniations (1 impingement, I knew of this one because it happened in 05).
EEG/AEP/VEP were also done (all good).
He also did some minor strength and coordination tests which he said were fine.
I called the neuro after I recieved the report and he was adament that I do not have als but did offer out the # for an als clinic for piece of mind. However, the report cited " EMG REVEALED EVIDENCE OF ACTIVE DENERATION IN C7 & S1 INNERVATED MUSCLES BILATERALLY. I read on here that if the words "active" or "chronic" DENERATION appear on the report it is not good and considered "DIRTY". Is this true? Or should I accept the clean bill of health from the neuro?
I do have another appt. with a different neuro (with EMG) on 5/1, not the als clinic.
I have since been on meds for anxiety and depression which I never thought would be the case for me.
I want piece of mind and my life back. The INTERNET is a sickness in itself!
God bless to you and your families!
Physical activities running, gym activities I would get an initial burning sensation along with weak muscle fatigue afterwards (shoulders and quads). However, I have not been doing any of these for several weeks. Ran last week and my legs felt very heavy afterwards and was very sore for 3-4 days. I know I should experience these when not doing this for several weeks but not for that extended period of time. Even holding the cell phone to my head I get pain / tired after several minutes (both shoulders).
No problems going up/down stairs, tripping, lifting objects or opening things.
My right arm has had elbow pain for several weeks and the bottom of my forearm around elbow is painful and very weak when I do/lift certain items in a certain position (forearm pain was there long before the elbow issue).
Twitching started in both arms but has pretty much centralized in the right arm (bicep & forearm). Although I do get twitches in the shoulder as well. Still get daily twitches in my left arm (same areas) but not as frequent.
Right hand feels a bit tired some times and maybe a bit weaker than the right.
I can still lift very heavy and carry items without a problem (like a 2 & 3 y/o) and curl 30 lb dumbells for several sets (10 or more each time).
Other weird issues have happened as well but I will not get into that.
Saw my GP who referred me to a neuro.
I had an EMG done (neuro did my left side only , right side was the worse side though). Mild to modrate carpel tunnel in both hands was noted. He said you passed a big test today, but wanted to run a few more reports to rule out other things (MS). I got an MRI of the brain and cervical spine (all good). Although the MRI showed 3 disc herniations (1 impingement, I knew of this one because it happened in 05).
EEG/AEP/VEP were also done (all good).
He also did some minor strength and coordination tests which he said were fine.
I called the neuro after I recieved the report and he was adament that I do not have als but did offer out the # for an als clinic for piece of mind. However, the report cited " EMG REVEALED EVIDENCE OF ACTIVE DENERATION IN C7 & S1 INNERVATED MUSCLES BILATERALLY. I read on here that if the words "active" or "chronic" DENERATION appear on the report it is not good and considered "DIRTY". Is this true? Or should I accept the clean bill of health from the neuro?
I do have another appt. with a different neuro (with EMG) on 5/1, not the als clinic.
I have since been on meds for anxiety and depression which I never thought would be the case for me.
I want piece of mind and my life back. The INTERNET is a sickness in itself!
God bless to you and your families!