Just J
Distinguished member
- Joined
- Oct 30, 2007
- Messages
- 300
- Reason
- DX UMND/PLS
- Diagnosis
- 01/2010
- Country
- US
- State
- MD
- City
- Havre de Grace
My husbands mobility has declined for 3 yrs and now uses a cane to walk. Sitting is a problem too and needs to lay down for most of the day. Until now we had no possibilities of a diagnosis. It just felt like a waiting game. Anyway, 2 weeks ago we went to new Neuro at Johns Hopkins. Possibilities are PPMS (Primary Progressive Multiple Sclerosis), HSP (Hereditary Spastic Paraparesis), or PLS. BTW, no family history of HSP but has history of MS but not this form of MS. More tests are forthecoming and additional appointments with Neuro and more brain scans/MRIs. Hope to have more definitive answers in the coming weeks. I don't know that ALS has been completely ruled out at this point but EMGs are clean. None of these three possibilities seem to be life threatening so that makes me feel a whole lot better. I am just unsure of possible treatments at this point...I assume quality of life will still be quite limiting. That's hard to get used too (we are still quite young 40's and 50's). I pray for strength every day. Thanks to everyone for being here and listening. ~Judie