sdsyd
Distinguished member
- Joined
- May 22, 2008
- Messages
- 329
- Country
- US
- State
- sd
- City
- piedmont
Well- heres the skinny. I am going to trial provigil to combat fatigue. Begin OT/PT to monitor strength/ build endurance. HE talked to us for a good hour about ALS. He asked us where we were at emotionally if he were to tell us today that I had ALS. I said " SO WHAT!" and he said that is where the attitude needs to remain. There are no further tests he wants to conduct until January follow-up (EMG?) I am to call him to report on effects of provigil and if I decline further. Continue diazapam for cramps/Lunesta for sleep. He watched the fasics in my feet, said I am walking slower, my grip strength is declining, but with ALS he would expect more atrophy than he sees by now. At this time he says "I'm not going to say you don't have ALS" what you have at this time is: "fatigue,weakness,fasiculations,cramping,brisk reflexes and a good attitude"
So- whatch'all make of that?
Love,
Cindy
So- whatch'all make of that?
Love,
Cindy