sandra/ca
New member
- Joined
- Jan 18, 2008
- Messages
- 4
- Reason
- Learn about ALS
- Country
- US
- State
- ca
- City
- Tustin
Hi All,
I'm 49 and am having nerve problems and now, possible weakness. I wanted to get experienced opinions on my history. Late summer I noticed foot slapping on the right, it went away but came back worse in October and was diagnosed w/foot drop. Neuro EMG testing showed 2+ IA, 3+ Fibs and 3+sharp waves. The NCV studies showed gross abnormalities on F-waves and H-reflex (no response/peroneal).
The neuro was initially convinced I had a spinal problem and then thought I had a virus attacking the sciatic nerve bundle (had no pain whatsoever but some numbness). Even a spinal tap showed up nothing. I know this Doc because he diagnosed me w/carpal tunnel both hands at the beginning of last year. He sent me to a rheumotologist who ran more tests and is looking at connective tissues diseases, including dermatomyositis. He asked me how long I'd had the hand tremors, I'm embarrassed about them and try to hide it. This affects what I'd call fine motor movement. I held a paper out for my husband to take and the whole thing was shaking (he asked why is your hand shaking like that?)
My legs are starting to tremble now and I wonder if it's weakness, i.e., bending at knees and legs shake/quiver from the minor effort. I'm very muscular and thin. My tongue shakes too and I laughed about it at the Doc's office. If I slightly open my mouth, tongue still inside, my whole mouth twitches; even under my eyes. If I hold the position, it occasionally twitches/pulls to the right side. If I "rest" my tongue on my lower lip, protruded a tiny amount, it looks like tiny spasms are there with more activity toward the center of my tongue.
So, I'm hoping for some opinions on why this COULDN'T be ALS-you know, what doesn't "match". I see the Neuro next week. Thanks for listening.
I'm 49 and am having nerve problems and now, possible weakness. I wanted to get experienced opinions on my history. Late summer I noticed foot slapping on the right, it went away but came back worse in October and was diagnosed w/foot drop. Neuro EMG testing showed 2+ IA, 3+ Fibs and 3+sharp waves. The NCV studies showed gross abnormalities on F-waves and H-reflex (no response/peroneal).
The neuro was initially convinced I had a spinal problem and then thought I had a virus attacking the sciatic nerve bundle (had no pain whatsoever but some numbness). Even a spinal tap showed up nothing. I know this Doc because he diagnosed me w/carpal tunnel both hands at the beginning of last year. He sent me to a rheumotologist who ran more tests and is looking at connective tissues diseases, including dermatomyositis. He asked me how long I'd had the hand tremors, I'm embarrassed about them and try to hide it. This affects what I'd call fine motor movement. I held a paper out for my husband to take and the whole thing was shaking (he asked why is your hand shaking like that?)
My legs are starting to tremble now and I wonder if it's weakness, i.e., bending at knees and legs shake/quiver from the minor effort. I'm very muscular and thin. My tongue shakes too and I laughed about it at the Doc's office. If I slightly open my mouth, tongue still inside, my whole mouth twitches; even under my eyes. If I hold the position, it occasionally twitches/pulls to the right side. If I "rest" my tongue on my lower lip, protruded a tiny amount, it looks like tiny spasms are there with more activity toward the center of my tongue.
So, I'm hoping for some opinions on why this COULDN'T be ALS-you know, what doesn't "match". I see the Neuro next week. Thanks for listening.