skipper66
Very helpful member
- Joined
- May 20, 2012
- Messages
- 1,527
- Reason
- Lost a loved one
- Diagnosis
- 00/0000
- Country
- US
- State
- IL
- City
- SMALL TOWN IN
This is supposed to be a support forum in which we help and listen too each other. Posts that say there is No Hope and that ALS is a death sentence are not a bit helpful to any of us. We are already scared too death about this horrible disease. We are worried or depressed enough seeing what it is doing to us or our loved one's. We need ideas from comfortable clothing, devices, and things to help our PALS. Most of all we need prayers and Hope. Many people on here have lost their PALS but stay on here to help support everyone else. They teach us how to value each day and how to keep our PALS comfortable. They understand what were go through and are there for us. Sometimes, we just need a good laugh. I truly understand grief and have experienced it with the loss of my mother. But, making other people feel your pain isn't going to help you heal and is of no benefit to others. Kim