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Max94

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May 6, 2017
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Learn about ALS
Country
ARG
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Buenos Aires
City
Buenos Aires
Hello, everyone!

First of all, i'm not very confident with English language. Sorry if I make some mistakes. I'm sure you won't have problems understanding me!

I'm a 23 years old male, and i've been searching for a diagnostic for over a year (March 2016)... and i've experienced many symptoms, most of them concerning muscle sensations like fasciculations (all over my body) and stiffness.
I'm not taking much of your time, I will be clear.

It all started with a Hipertonicity of my pelvic Muscles and then my symptoms grew up to fasciculation all over my body. That was like a year ago.
All these health issues have been making me mad, to the point I became hipocondriac. I have read tons of ALS post on the internet (and I mean tons, like most of you did, probably) and I know all the facts of how your mind can make you have a bad time, but it would be great if some of you write your opinions on my case :)

I made an EMG on my legs, and it came normal. Completely normal. That was strange, because I know I have faciculations. I can feel them but the EMG could not...
I made all kind of bloodtest. All came normal.
I visited a neurologist who told me that I had no clinical sings of ALS, and that I should probably calm down, because it was all anxiety.
Near a month ago (March 2017) I started to feel some kind of problem swallowing. And with this part I'll try to explain my fellings very well: I have no weakness, but I feel like my throat closes when I swallow, and that my tongue is doing so much strong against my palate. I feel also that the food is getting stuck in the part of my tongue where the throat starts My tong twitches sometimes, i can feel it, as well as some kind of odd sensations, like a soft burning in my tongue.
I've visited a speech specialist, and she told me the same as the neurologist: I have no clinical sings.
Buy i always say the same: i'm just not feeling the same.
I 've read of Bulbar onset of ALS.
Now i'm scared because i' starting to see that, sometimes, I tend to blur some letters, like "r", "t" or "d", but i don't know if I should blame that to the excesive force my tongue does when swallowing. But that also brings the questions of why is my tongue doing that strong...?
Sometime I just think it's all my mind, but it very hard not to concentrate on my fasciculations, my speech and my swallowing...
Could it be a Bulbar onset starting? At my age? is it possible?
I know i'm a bit obsessive, but I find hard to think that it's just my mind and my anxiety... I mean... all these odd symptons?
Who can I know it's not ALS for sure?

Thank you everyone for taking your time to read me and give me your opinion. I very appreciate that!
 
Nothing in your post sounds like ALS. It sounds like benign (harmless) fasciculations and anxiety.
 
I agree with Kim, you are only 23 there should be other things on your mind. Stay away from the internet, we can always tell by the words you use where you have been.
Al
 
Thanks both for your replies!

Sometimes I find myself thinking all day long about my swallowing or my speech or my limbs, and it's annoying.

That talks much about how anxiety works in me.
You know... It's been a really bad year for me since I first started reading about ALS and making my mind up to the fact I could have it... I know I should calm down, but it's just that Mental can be very insidious, indeed, and I tend to think more than I should... My sympthoms are real, but the more you search, the more you scare yourself.

It keeps me relax that I don't even have problems concerning weakness yet, only fascs and one or two cramps sometimes. Speech problems came a month ago but it's not persistent. It almost goes away the moments I'm calm. Same with the swallowing.

Next 26th may I'm visiting me Neuro again for a control. She told me once I had nothing, and I hope now to be the same as before. Time will only tell.

Again, thanks for your responses!
 
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