Itsmorin
New member
- Joined
- Jul 3, 2022
- Messages
- 2
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- CA
- State
- BC
I have read the stickies. I do have some questions for clarification though
34 y/o female. I will begin by saying my symptoms do seem to be sensory in nature and I have read the sticky. Before coming here I believed my muscle fatigue was “weakness” as well as buzzing/tingling/crawling and tickling feeling. This is how I described it via a phone appointment with my family Dr. back in October. He sent in a referral for a neurologist who I saw in the new year. As I interpret it, it is the inability to do and not harder to do? I have not lost function and don’t seem to have any weird gait or “inability to do”. Is it very noticeable when a muscle has lost function?
I have seen the neurologist twice now. (1st appt Jan) It was suspected possible b12 deficiency because I was low normal. I had a quick conversation of symptoms, he made me walk in a line foot in-front of another. Eyes closed with hands out. Nothing crazy. Had a nerve conduction done and that was perfect said nerves were great. But after my first appointment a few months later, he asked me how I was and figured my symptoms should have been gone. I came in for a second appointment shortly after (May) and he suggested maybe doing another nerve conduction and possibly an EMG. He did a few more quick neuro tests. Made me press up and down with feet in his hands rubbed cold metal up and down my legs, tapped wrists with metal and his thumb between.
I guess my other question is, would he have seen “weakness” that would warrant an EMG. Should an EMG still be done or should I not worry about this anymore and he would’ve seen something? He decided not to do it and ordered an MRI. I’m in Canada and our wait time is about 6 months for the MRI through our healthcare so I will likely pay privately to get it done next week. I’m a mom of two girls 2.5 and 1 and I’m just obviously worried. I have tingling bilaterally in both feet and often below knees into the legs and sometimes hands.
I have all day everyday twitching (all over body) and this week both legs or one worse than the other feels tight. (Is this spasticity?) I have read sensory points away but I was curious if it’s possible, if there is twitching and spasticity together does that warrant concern. Or would it be clinical weakness and either twitching or spasticity together etc? I have recently gotten a stiff right wrist and slight pain type feeling from wrist up forearm. I’ve read stories of people suspected of carpel tunnel and it being ALS.
My mother in law (ex husband) passed of ALS and her initial diagnosis was MS years prior. I am not sure how that got crossed at all and I don’t think we dove into it at the time as her condition was quickly progressing. For these reasons are why I am asking for clarification and thoughts. Thank you so much for your time.
34 y/o female. I will begin by saying my symptoms do seem to be sensory in nature and I have read the sticky. Before coming here I believed my muscle fatigue was “weakness” as well as buzzing/tingling/crawling and tickling feeling. This is how I described it via a phone appointment with my family Dr. back in October. He sent in a referral for a neurologist who I saw in the new year. As I interpret it, it is the inability to do and not harder to do? I have not lost function and don’t seem to have any weird gait or “inability to do”. Is it very noticeable when a muscle has lost function?
I have seen the neurologist twice now. (1st appt Jan) It was suspected possible b12 deficiency because I was low normal. I had a quick conversation of symptoms, he made me walk in a line foot in-front of another. Eyes closed with hands out. Nothing crazy. Had a nerve conduction done and that was perfect said nerves were great. But after my first appointment a few months later, he asked me how I was and figured my symptoms should have been gone. I came in for a second appointment shortly after (May) and he suggested maybe doing another nerve conduction and possibly an EMG. He did a few more quick neuro tests. Made me press up and down with feet in his hands rubbed cold metal up and down my legs, tapped wrists with metal and his thumb between.
I guess my other question is, would he have seen “weakness” that would warrant an EMG. Should an EMG still be done or should I not worry about this anymore and he would’ve seen something? He decided not to do it and ordered an MRI. I’m in Canada and our wait time is about 6 months for the MRI through our healthcare so I will likely pay privately to get it done next week. I’m a mom of two girls 2.5 and 1 and I’m just obviously worried. I have tingling bilaterally in both feet and often below knees into the legs and sometimes hands.
I have all day everyday twitching (all over body) and this week both legs or one worse than the other feels tight. (Is this spasticity?) I have read sensory points away but I was curious if it’s possible, if there is twitching and spasticity together does that warrant concern. Or would it be clinical weakness and either twitching or spasticity together etc? I have recently gotten a stiff right wrist and slight pain type feeling from wrist up forearm. I’ve read stories of people suspected of carpel tunnel and it being ALS.
My mother in law (ex husband) passed of ALS and her initial diagnosis was MS years prior. I am not sure how that got crossed at all and I don’t think we dove into it at the time as her condition was quickly progressing. For these reasons are why I am asking for clarification and thoughts. Thank you so much for your time.
