Need neck brace for drop head.

Status
Not open for further replies.

kenneva

Member
Joined
Sep 5, 2008
Messages
12
Reason
CALS
Diagnosis
06/2008
Country
CA
State
Alberta
City
Grande Prairie
We got a neck brace for my husband about 3 weeks ago.Dosn't work well ,puts to much pressure on his chin. I went looking on the forum for some other type of brace,and found everyone is in the same boat,nothing works.The only thing we found is tying his head to the back of his chair for watching t.v. But he says he cann't walk around with the chair.lol.
You would think that someone would have come up with something by now.als has been around for a long time.Any way my husbands brother & him have been brain storming and hopefully will come up with something.If anyone has found a brace that works let us know.
 

DgtofTNfan

Senior member
Joined
Feb 14, 2009
Messages
565
Reason
Learn about ALS
Country
US
State
KY
City
Louisville
kenneva,

Found this ALS website where there is an article from a nurse about neck muslce weakness in PALS and also some examples of neck braces. You may have seen this already but thought I would share the link just in case....

http://www.focusonals.com/neck_supports.htm

Dana
 

Jennifer51

Distinguished member
Joined
Jul 7, 2008
Messages
441
Reason
PALS
Diagnosis
03/2008
Country
UK
State
England
City
London
if you use the search feature, someone else complained about bought ones some time ago, and made their own, their instructions are in the forum somewhere, just do the search,
 

stgeorge

New member
Joined
Jan 29, 2009
Messages
6
Reason
CALS
Diagnosis
10/2007
Country
US
State
ga
City
sandersville
I got a pediatric cervical collar for my husband, very soft and not as wide a adult. He likes it.
 

zigfish

New member
Joined
Mar 18, 2009
Messages
1
Reason
Loved one DX
Diagnosis
12/2007
Country
US
State
ma
City
walpole
funny , me and my brother stay up for hours trying to build a head support!
 

kenneva

Member
Joined
Sep 5, 2008
Messages
12
Reason
CALS
Diagnosis
06/2008
Country
CA
State
Alberta
City
Grande Prairie
Thanks everyone .
I think I have a brace ordered from the U.S. that will work. Will let you know.
 

kenneva

Member
Joined
Sep 5, 2008
Messages
12
Reason
CALS
Diagnosis
06/2008
Country
CA
State
Alberta
City
Grande Prairie
Thanks everyone .
I think I have a brace ordered from the U.S. that will work. Will let you know.
 
Status
Not open for further replies.
Top