Aceanddeuce
New member
- Joined
- Jan 25, 2012
- Messages
- 3
- Reason
- CALS
- Diagnosis
- 08/2011
- Country
- US
- State
- Louisiana
- City
- Madisonville
I would like to thank anyone in advance for advice or suggestions. My husband (46) was told he had als in Aug. 2011. One month prior he was waterskiing, dirt bike riding, etc. They did an emg and with some muscle weakness and twitching he was having they gave him this diagnosis with the 1st visit. We were shocked and blown away as you can imagine. We went to an alternative doctor and he said he wasn't convinced it was als. He diagnosised him with leaking gut and found out he was allegeric to diary and nuts. Since oct. we have cut out all wheat, milk, etc. to heal the gut. Since December he has lost 20 lbs (began at 152), lost all strength in upper body ( he can no longer lift up our one year old or a gallon of milk.). Legs are still strong, voice fine, no swallowing problems.).
I know they say als is a very progressive disease, but has anyone ever had such a decline within months like this? I'm not trying to be in denial, but just want to make sure it is not something treatable like lymes or a parasite. I can't imagine my life without the father of our three children.
I know they say als is a very progressive disease, but has anyone ever had such a decline within months like this? I'm not trying to be in denial, but just want to make sure it is not something treatable like lymes or a parasite. I can't imagine my life without the father of our three children.