emma1230
Member
- Joined
- Aug 27, 2008
- Messages
- 13
- Reason
- Loved one DX
- Diagnosis
- 11/2007
- Country
- US
- State
- wa
- City
- everett
hello! I just now figured out how to post a new thread or make a post.. I have wanted to so many times, but could not figure it out. I am new, and have only posted once before.. If any of you have any advice, please reply here and my email.. [email protected] and put als in the title bar..
I am so scared.. I am 30 years old, am married and have a 2 1/2 year old and a 5 month, and we just remodeled my moms house so we all could live together and take care of her. so, we've now been living here for about 3 weeks. before we moved in, my mom would stay the night by herself and then I would come over with the girls first thing in the morning.. and she was fine.
Now, she does not sleep.. she gets up and down all night long.. Sorry, I forgot to mention that she has bulbar onset, but now she can hardly walk and now can use her hands or arms.. There is so much I want to say, and I just can't seem to organize my thoughts.. so i apologize..
okay, so now, she seems like at time she is SO OUT OF IT>. she looks like she is on another planet.. I DON'T KNOW WHAT TO DO!
We went to the dr for the leg cramps, but even with medicine she gets up and down all night long. I thought that her lack of sleep was making her out of it, but could she have dementia? I read that it is rare, but she is just not the same person..
it is so so so hard for me.. i love my mom so much and hate that she has to suffer like this.
Her boyfriend stays here at the house as much as he can, so it is helpful, but what do I do when I can't handle her? how am I supposed to know who to come and help me? everyone says she is entitled to home care.. but she has cobra insurance through her work, and doesn't qualify for medicare until april of 09...
how do people know what to do? In june she was okay! she could walk pretty good etc.. now just a few months later she is an entirely different person..
could this just be her way of dealing with it? (her getting so out of it?)
We went to a natural path and paid so much money, like 1000 bucks a month and she said my mom WOULD BE HERE to watch her grandchildren grow up..
I feel so stupid for believing her. they replace all of my moms teeth because the metal in her mouth was the cause.. the natural path dentist cost us even more 1000's.. and now we are broke..
I could have used that money to get help or in home care.. I would have believed in santa clause, if it meant my mom would get better.. i just feel like such an idiot for believing.. they said she had lyme disease..
okay i am rambling.. I apologize that I am so scatter brained.. I just could go on forever.. if anyone has any advice, i would appreciate it..
this all just sucks.. my mom is my best friend.. i am so sad that she has this! thanks for reading.. sorry to complain..
I am so scared.. I am 30 years old, am married and have a 2 1/2 year old and a 5 month, and we just remodeled my moms house so we all could live together and take care of her. so, we've now been living here for about 3 weeks. before we moved in, my mom would stay the night by herself and then I would come over with the girls first thing in the morning.. and she was fine.
Now, she does not sleep.. she gets up and down all night long.. Sorry, I forgot to mention that she has bulbar onset, but now she can hardly walk and now can use her hands or arms.. There is so much I want to say, and I just can't seem to organize my thoughts.. so i apologize..
okay, so now, she seems like at time she is SO OUT OF IT>. she looks like she is on another planet.. I DON'T KNOW WHAT TO DO!
We went to the dr for the leg cramps, but even with medicine she gets up and down all night long. I thought that her lack of sleep was making her out of it, but could she have dementia? I read that it is rare, but she is just not the same person..
it is so so so hard for me.. i love my mom so much and hate that she has to suffer like this.
Her boyfriend stays here at the house as much as he can, so it is helpful, but what do I do when I can't handle her? how am I supposed to know who to come and help me? everyone says she is entitled to home care.. but she has cobra insurance through her work, and doesn't qualify for medicare until april of 09...
how do people know what to do? In june she was okay! she could walk pretty good etc.. now just a few months later she is an entirely different person..
could this just be her way of dealing with it? (her getting so out of it?)
We went to a natural path and paid so much money, like 1000 bucks a month and she said my mom WOULD BE HERE to watch her grandchildren grow up..
I feel so stupid for believing her. they replace all of my moms teeth because the metal in her mouth was the cause.. the natural path dentist cost us even more 1000's.. and now we are broke..
I could have used that money to get help or in home care.. I would have believed in santa clause, if it meant my mom would get better.. i just feel like such an idiot for believing.. they said she had lyme disease..
okay i am rambling.. I apologize that I am so scatter brained.. I just could go on forever.. if anyone has any advice, i would appreciate it..
this all just sucks.. my mom is my best friend.. i am so sad that she has this! thanks for reading.. sorry to complain..