need help

[Icanmanz]

cukita, there is help out there. Believe me, there is, don't take no for an answer. Call Alsa, go to the Social Security office, tell them you have a terminal illness, and you need help. They just can't throw you to the curb, and leave you there to perish. That's BS! Cukita, El Paso is part of Texas, Texas laws will, and should not turn you down. El Paso is not so small, I have been through there lots of times. It is hard to believe that El Paso being the size it is is turning you down. Where Have you been going to, have you called Alsa? I am sure they have a County Hospital there. Please let us know! Good luck, and God bless!

Irma

 

[cukita99]

believe me, i tried n they have said, sorry. when i fell down n hurt my head i went to the er at the county hospital. i waited 7 hours n was never seen by a doctor so i went home. they sent me a 500dollar bill. mda help pay my emg test but that was all.

 

[brooksea]

Texas...the GREAT STATE of TEXAS! My God, My God why hast thou abandoned me?

Why do we keep hearing horror stories from TX? What is up with the ALSA in TX? Do we need to start an email campaign or what?

Irma, you seem to have had a great experience with ALSA. Where do they draw the line? Is El Paso too close to the border? Have we shortened our border down there? Is the ALSA drinking too many Martguerita's?

I was born in Texas and this is really "a disappointment."

 

[Lorie]

Cj

H---! Ya! Lets start a E-Mail Campaign. One day these folks are going to get tired of us ganging up on them and do something. I will report them to the National ALSA. Maybe these state ALSA's need to be kept in check. Alabama's didn't serve S. Alabama, until I bugged the H--- out of them. They served N. Alabama. Now they are holding meeting every third thursday and assisting people here. I know things can get done!

Lorie

 

[cukita99]

thanks, if there is anybody that can tell me what else i need to do to get help let me know.

 

[brooksea]

sent you PM.

I will try to help you if you will allow it.

 

[cukita99]

thanks cj n lorie for ur help. i know u have ur hands full n still find the time to help me. god bless u both love lupe

 

[MtPockets]

I am praying for a door to open, so that you can get the help you need. God can open doors that no man can shut.

 

[Lorie]

Capt. Al

You are always so positive. I wish more people could be like you!

Lorie:-D

 

[brooksea]

sent email to Nat'l ALSA

I'm waiting for response from ALSA in order to get help for Lupe. Will give it til Wednesday for response from either the Nat'l or South Texas ALSA.

Will let you all know the results. May need to enlist Y'ALLs help!

 

[cukita99]

thanks, somebody from alsa contacted me n they r looking intosome asistance thur the age n dissable. i will keep u posted

 

[olly]

i'm sure they will do all they can to help cukita, there very nice people in texas especially at the alsa, renee lowery who helped delb is in north texas, they have been brillient and can't do enough for him.
i hope you get all the help you need soon.
god bless cukita and keep hoping, i'll be thinking of you
caroline

 

[brooksea]

Lupe,

Please do keep us informed of what assistance you are able to get! We want to make sure your needs are met!

 

[cukita99]

i got some phone numbers to call for assistance here in el paso, so since i cant talk i forward them to my neighbor to call. i will keep u posted. thank u everybody 4ur help

 

[brooksea]

Just wanted to post this response from ALSA. Hopefully, Lupe, you will get the help you need. If you don't we want to hear about it!


Teresa Cheek wrote:
>
> Hello, Cindy,
> I am with the ALS Association National Office and work from San Antonio, TX. I have contacted this patient to get her personal information (name, address, living situation, etc.) and have found a couple of agencies in El Paso that should be able to assist her. I have also provided the ALS Association Chapters in South Texas and New Mexico with her information. We will do everything that we can to assist her.
>
> Thank you for your concern and for providing us her postings to the ALSforums site. Also, please let us know if we can help you in any way. Caregiving is a big job.
>
> Teresa
> Teresa D. Cheek, LMSW
> Director Chapter Patient Services
> The ALS Association, National Office (Remote)
> PO Box 591907
> San Antonio, TX 78259-1907
> Phone: (210) 383-3141
> Fax: (210) 579-8500
> Email: [email protected]
>
> Our nationwide network of 41 chapters provides patient and family support on a local level to those living with ALS and their families. To find out about programs in your community, visit www.alsa.org/community.