stanley12
New member
- Joined
- Feb 3, 2020
- Messages
- 6
- Reason
- Other
- Diagnosis
- 00/0000
- Country
- US
- State
- TX
- City
- temple
Hi--
I have been an observer of this forum for a year and a half now.
18 months ago, I had fasciculations everywhere. They would come and go, but would experience bouts daily in any part of body. Also had fatigue, weakness, and crawling sensation all over body.
Was lucky, and got in with neuro fairly quick. He immediately ordered a Nerve/EMG-- it was clean-- 3 months later another one--- it was clean.
Blood work was good.
MRIs normal
Hyper Reflexive, but with no "clinical weakness"
My diagnosis was BFS, but he wants to follow up to look for "progression"
Going forward, my symptoms have waxed and waned, but recently have gotten worse. My forearms will get really stiff, making it hard to use my hands...
My left foot does not always do what its supposed to do. The fasics are all over shoulders, back, etc.
I have follow up with my neuro
My questions are:
1. do 2 clean emgs at very beginning of symptoms still rule out ALS?
2. after 18 months, would i have noticed severe disabilities by now?
I never knew much about this disease until it happened to me. I have read countless articles, and spent hours on it. It consumed my life. Since then, i donate as much $ as I can toward the association.
They need all the help they can get for this terrible disease.
I have been an observer of this forum for a year and a half now.
18 months ago, I had fasciculations everywhere. They would come and go, but would experience bouts daily in any part of body. Also had fatigue, weakness, and crawling sensation all over body.
Was lucky, and got in with neuro fairly quick. He immediately ordered a Nerve/EMG-- it was clean-- 3 months later another one--- it was clean.
Blood work was good.
MRIs normal
Hyper Reflexive, but with no "clinical weakness"
My diagnosis was BFS, but he wants to follow up to look for "progression"
Going forward, my symptoms have waxed and waned, but recently have gotten worse. My forearms will get really stiff, making it hard to use my hands...
My left foot does not always do what its supposed to do. The fasics are all over shoulders, back, etc.
I have follow up with my neuro
My questions are:
1. do 2 clean emgs at very beginning of symptoms still rule out ALS?
2. after 18 months, would i have noticed severe disabilities by now?
I never knew much about this disease until it happened to me. I have read countless articles, and spent hours on it. It consumed my life. Since then, i donate as much $ as I can toward the association.
They need all the help they can get for this terrible disease.