NINA197711
Member
- Joined
- Mar 17, 2019
- Messages
- 15
- Reason
- Other
- Diagnosis
- 00/0000
- Country
- US
- State
- NY
- City
- Brooklyn
Im 41 female had strange spasm in october in my buttock area , 3 month was limping had ache burning in coccyx area my left side face is weird as well tingling twitching pressing pulling episodes now my fave is slightly thinner than right had weakness right hand now its in left hand , had nights with burning down waist and buzzing head sweating alot and lost 12 lb since... EMG result is bad((( fibs pws poly all left side muscles((( paraspinal L5 and so on. Neuro kicked me out when i asked is rhis ALS? She said im sick in head , second neuro same...(( no one believes me , was lots in ER s cause could not understand what was going on with me... because of my gait the did spine mri cauda equina rulled out, brain mri clean, blood clean... in march 4 emg showe psw fibs and psw , but january one only fibs and poly so is rhis ALS right? Please any advise since noone listens to me nore family nore doctors all telling me i am crazy((( thanks alot sorry my english im not american.