- Joined
- Nov 5, 2009
- Messages
- 14,212
- Reason
- Lost a loved one
- Diagnosis
- 00/0000
- Country
- US
- State
- WA
- City
- Seattle
Rob,
Absolutely, you need a display. It is not optional. Everything Steve says is true. I forgot to say that when I first posted! I am aghast anyone considers that a luxury.
>5 degrees of anterior tilt is not any kind of inherent risk for death! The ATP may not understand ALS and that you will be with your wife, Rob. As Liz says, a chest support [frequently one that my company makes, called the Monoflex™, is supplied] and either the knee block made by Permobil or the Evoflex® made by us, used across the mid-thighs, can protect PALS and everyone else from sliding in anterior tilt. In later disease, when the trunk/head are very weak, you would simply not use it or ensure that someone was holding on to the PALS' torso -- basically hugging them, when they were tilted forward.
Again, anterior tilt could still be important in pain relief at that point, since most people are uncomfortable with their back pressed against any kind of chair, let alone a wheelchair, all day. It could also help with clothing/blanket adjustment, using a urinal, and positioning a lift sling.
Absolutely, you need a display. It is not optional. Everything Steve says is true. I forgot to say that when I first posted! I am aghast anyone considers that a luxury.
>5 degrees of anterior tilt is not any kind of inherent risk for death! The ATP may not understand ALS and that you will be with your wife, Rob. As Liz says, a chest support [frequently one that my company makes, called the Monoflex™, is supplied] and either the knee block made by Permobil or the Evoflex® made by us, used across the mid-thighs, can protect PALS and everyone else from sliding in anterior tilt. In later disease, when the trunk/head are very weak, you would simply not use it or ensure that someone was holding on to the PALS' torso -- basically hugging them, when they were tilted forward.
Again, anterior tilt could still be important in pain relief at that point, since most people are uncomfortable with their back pressed against any kind of chair, let alone a wheelchair, all day. It could also help with clothing/blanket adjustment, using a urinal, and positioning a lift sling.
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