- Feb 9, 2020
Hello everyone. I posted on here before but my thread got deleted for an obvious reason. Anyways I have been dealing with body wide issues over the past 16 months. It started with a weak feeling that ended up making me go to the ER where they did blood work for electrolytes and all. All came back normal and they sent me home. Ever since then I’ve been twitching body wide but it was mostly in my legs. I’ve had a brain MRI done that came back normal. 2 EMGs over a 10 month period, one on my calves and thighs and one on my arms and hands. Both came back normal. But my biggest issue is that the neurologist isn’t highly really recommend so I’m scared he didn’t do the EMG properly. I went to university of Maryland in Baltimore in March and saw a neuromuscular specialist who did strength tests and said I was fine. Fast forward to this past week and my twitching has gotten so bad. It’s in my feet, calves, thighs, arms etc.. My legs shake and feel like their gonna buckle when walking down the steps, I try to do anything physical and my whole body goes weak and I can’t lift my arms up. I’m really scared that I actually have this disease even though the chances of having it at 24 yrs old is pretty rare. I have my 6 month follow up on Friday with the neuromuscular specialist Friday by phone and will try to get a face to face appointment with him. Sorry for the long thread I’m just at a low point in life right now. Thank you all.