- Joined
- Nov 18, 2014
- Messages
- 4,988
- Reason
- PALS
- Diagnosis
- 08/2015
- Country
- US
- State
- South
- City
- The Beach
I'm in a lot of pain and some of it is from packing and bending with weak muscles. Much of it is from the sprained ankle that didn't heal. The rest is just this beast.
I went from walking fast to a wheelchair. I have a transport chair and one I can roll myself. I'm ordering a light power one for the interim. They are measuring me for my PWC. That's where I need help.
I can't wait until I go back to clinic. My local neuro will see me quickly. What does he need to write on the RX for the chair. He will write whatever I need.
I'm trying to remodel a bathroom. Do I need my neuro to order an OT to help me with this? My ceilings are 9 feet high. Can I get a track put up there that supports transporting me from bedroom to bathroom?
I'm so overwhelmed I don't know where to start. I thought, because of my slow progression, I would have six months to get all this done.
My support group is down to 6 PALS. Two of us don't have CALS but my friend, Fred, has stepped up to the plate in a big way and we bought a condo together. It is big but needs lots of modifications. I plan on paying for them out of the $100,000 I net from the sale of my condo (after commissions and paying Fred back for half of the downpayment he put up.)
There is also a lady who will sell me a Dodge Caravan for $20,000. It has a rear entry motorized and is a 2016 with 40,000 miles. The other option is to finance something so I won't have to use a big chunk of money. I still have a leased SUV that has another year on the lease.
I know there are so many things to consider and I tried to stay ahead of the game but falling and the hurricane evacuation made it impossible. I also had to wait until July 1 to get a portion of my retirement money.
It's all turning into one big nightmare. It's no wonder my family in NY don't want anything to do with it.
I went from walking fast to a wheelchair. I have a transport chair and one I can roll myself. I'm ordering a light power one for the interim. They are measuring me for my PWC. That's where I need help.
I can't wait until I go back to clinic. My local neuro will see me quickly. What does he need to write on the RX for the chair. He will write whatever I need.
I'm trying to remodel a bathroom. Do I need my neuro to order an OT to help me with this? My ceilings are 9 feet high. Can I get a track put up there that supports transporting me from bedroom to bathroom?
I'm so overwhelmed I don't know where to start. I thought, because of my slow progression, I would have six months to get all this done.
My support group is down to 6 PALS. Two of us don't have CALS but my friend, Fred, has stepped up to the plate in a big way and we bought a condo together. It is big but needs lots of modifications. I plan on paying for them out of the $100,000 I net from the sale of my condo (after commissions and paying Fred back for half of the downpayment he put up.)
There is also a lady who will sell me a Dodge Caravan for $20,000. It has a rear entry motorized and is a 2016 with 40,000 miles. The other option is to finance something so I won't have to use a big chunk of money. I still have a leased SUV that has another year on the lease.
I know there are so many things to consider and I tried to stay ahead of the game but falling and the hurricane evacuation made it impossible. I also had to wait until July 1 to get a portion of my retirement money.
It's all turning into one big nightmare. It's no wonder my family in NY don't want anything to do with it.