ScottKB
New member
- Joined
- Dec 12, 2014
- Messages
- 6
- Reason
- Learn about ALS
- Country
- US
- State
- HI
- City
- Honolulu
I am a 54 year old and 40 year type1 diabetic (no complications) who started having walking balance type issues a few years back. My thyroid and other things were checked and all was OK. About 6 months later, I started getting extremely cold burning spots (softball size) in the same spot on my right arm/elbow forearm and right calf. The gait issues came and went during this time but are persistent now. The doctor sent me to a neurologist who did physical therapy and ultimately an MRI (brain and spine with dye) which revealed pressure on the spine from the disc at C5/C6. She stated that there was slight changes in the brain but didn't think it was MS but possibly related to extreme sugar lows experienced as a long term diabetic. In the mean time, a warm spot developed on my left calf and numb spot on my left back shoulder. All are still present today.
I ended up getting surgery done on my disc (successful according to surgeon and xrays) but my symptoms have not reduced. In fact, they are worse now. And, cold spots, tingling, tremors, and single twitches are popping up briefly in new places every now and then. In addition, all of my symptoms (cold/warm spots, gait, etc.) are still prevalent in the places mentioned above. I don't seem to have any muscle weakness but I am having some thigh/leg pain. I am now wondering if they missed something like ALS.
I must admit that I am getting a little anxious lately due to the symptoms which probably heightens or adds to my symptoms.
Any advice would be helpful.
Thanks!
I ended up getting surgery done on my disc (successful according to surgeon and xrays) but my symptoms have not reduced. In fact, they are worse now. And, cold spots, tingling, tremors, and single twitches are popping up briefly in new places every now and then. In addition, all of my symptoms (cold/warm spots, gait, etc.) are still prevalent in the places mentioned above. I don't seem to have any muscle weakness but I am having some thigh/leg pain. I am now wondering if they missed something like ALS.
I must admit that I am getting a little anxious lately due to the symptoms which probably heightens or adds to my symptoms.
Any advice would be helpful.
Thanks!