ryanb
New member
- Joined
- Feb 22, 2021
- Messages
- 4
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- MI
Hello and thank you for taking the time to read this as it is a bit long, so for that, I apologize. I appreciate your time and knowledge.
I've had some very odd symptoms over the past 2.5-3 months. It all started with a sudden onset of constant belching, not matter if I had eaten or drank anything. Within one week I began to have strong heart palpitations (extra beat every 20-30 beats) so about 2-3 extra beats a minute thought it never turned into afib or anything sinister. Had a heart monitor for two weeks ( still waiting on findings, unfortunately). This all caused me to stop working out during this time. I had usually worked out 5 days a week for the past 3 years or so.
Thankfully both the bleching and palpitations slowly resided. However, in early Feb getting out of bed one morning I noticed my right leg was unusually weak from the knee down the right side of my leg to my foot. I hadn't started working out again so it took me by surprise. I explained it like my right lower leg was in a pool and I was trying to walk through the resistance of water and it just didn't feel right. Within a few days I also woke to my left arm feeling very weak and struggled to use the pinky and 4th finger. I had an X-ray and it shows mild osteophyte formation, facet hypertrophy with mild intervertebral disc space narrowing at the level of C5/C6 with mild bilateral bony neuroforamen narrowing at the level C5/C6. The left arm and finger weakness has since diminished some. T
he next week Feb 21st I woke to fasciculations on my right leg from the knee down to my foot. The very same area that felt weak.The next day I began to have fasciculations in both legs (knee down) and feet. It has since spread to both quads, around my elbow and on my right hand between the thumb and 4th finger. During this time, I did get a lucky appointment with a local nero who flat out told me this is all coming from my brain. He ordered a brain MRI that showed one tiny focal hyperintensity noted in the white matter of the left frontal lobe anteriorly. He deemed this to be normal for a 37 year old.
He ordered an EMG which he did himself (both arms and right leg). Interestingly the EMG did not pick up any fasciculations during my test even though I have them 24/7. He did witness them in my calves but just told me it looks benign. He did say my knee reflex was brisk but that was it.
He wasn't particularly friendly or reassuring so I guess the whole thing has not put my mind at ease. He did mention MS as a possibility since my mom has MS. With the MRI only showing one tiny focal lesion he just felt it was okay for now.
Also, all blood work has been within norm with the exception of ceruloplasmin being 15mg/dl (normal for this lab is 20mg/dl-60mg/dl). The Dr has not addressed this low level as of yet. I am waiting on a response.
I am really struggling with all of this since I did the unfortunate appointment with Dr.Google for my I'll call it "felt weakness in my right leg" with fasciculations. My right leg still feels weak and it's localized and has not spread to other areas.
I don't understand how the EMG did not pick up the constant fasciculations throughout my legs feet and arms/hand.
Attached is the EMG of upper. Trying to get a copy of lower.
Thank you again.
I've had some very odd symptoms over the past 2.5-3 months. It all started with a sudden onset of constant belching, not matter if I had eaten or drank anything. Within one week I began to have strong heart palpitations (extra beat every 20-30 beats) so about 2-3 extra beats a minute thought it never turned into afib or anything sinister. Had a heart monitor for two weeks ( still waiting on findings, unfortunately). This all caused me to stop working out during this time. I had usually worked out 5 days a week for the past 3 years or so.
Thankfully both the bleching and palpitations slowly resided. However, in early Feb getting out of bed one morning I noticed my right leg was unusually weak from the knee down the right side of my leg to my foot. I hadn't started working out again so it took me by surprise. I explained it like my right lower leg was in a pool and I was trying to walk through the resistance of water and it just didn't feel right. Within a few days I also woke to my left arm feeling very weak and struggled to use the pinky and 4th finger. I had an X-ray and it shows mild osteophyte formation, facet hypertrophy with mild intervertebral disc space narrowing at the level of C5/C6 with mild bilateral bony neuroforamen narrowing at the level C5/C6. The left arm and finger weakness has since diminished some. T
he next week Feb 21st I woke to fasciculations on my right leg from the knee down to my foot. The very same area that felt weak.The next day I began to have fasciculations in both legs (knee down) and feet. It has since spread to both quads, around my elbow and on my right hand between the thumb and 4th finger. During this time, I did get a lucky appointment with a local nero who flat out told me this is all coming from my brain. He ordered a brain MRI that showed one tiny focal hyperintensity noted in the white matter of the left frontal lobe anteriorly. He deemed this to be normal for a 37 year old.
He ordered an EMG which he did himself (both arms and right leg). Interestingly the EMG did not pick up any fasciculations during my test even though I have them 24/7. He did witness them in my calves but just told me it looks benign. He did say my knee reflex was brisk but that was it.
He wasn't particularly friendly or reassuring so I guess the whole thing has not put my mind at ease. He did mention MS as a possibility since my mom has MS. With the MRI only showing one tiny focal lesion he just felt it was okay for now.
Also, all blood work has been within norm with the exception of ceruloplasmin being 15mg/dl (normal for this lab is 20mg/dl-60mg/dl). The Dr has not addressed this low level as of yet. I am waiting on a response.
I am really struggling with all of this since I did the unfortunate appointment with Dr.Google for my I'll call it "felt weakness in my right leg" with fasciculations. My right leg still feels weak and it's localized and has not spread to other areas.
I don't understand how the EMG did not pick up the constant fasciculations throughout my legs feet and arms/hand.
Attached is the EMG of upper. Trying to get a copy of lower.
Thank you again.
Attachments
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