janicebuf
Active member
- Joined
- Jul 6, 2005
- Messages
- 36
- Reason
- Loved one DX
- Diagnosis
- 00/0000
- Country
- US
- State
- NY
- City
- east amherst
Hi Everyone,
I have not been on this forum for many years when my brother was diagnosed. [He passed at age 50].
I have been living with the fear of ALS since childhood, and am now about to turn 60. I've lost more family members than I can count, including a cousin at age 21, so you can imagine the anxiety level. My dad was 57 when he passed, my grandmother was 59, uncle 69, cousin's in their 30's, I can go on but you get my point.
Curious as to what thoughts are; I am at a crossroads in my life. I have severe osteoarthritis in both knees, they will need to be replaced. I am scared because my brother had his hip replaced, and wound up getting als literally within months of surgery. So......what do I do? Is there any info on either anesthesia or major surgery triggering the gene? I've avoided genetic testing because there is no treatment and in my opinion no hope at this point. I've heard for 40 years that 'a cure is around the corner', and apologies if I sound bitter, I kind of am. I think most would be after losing 40+ family members so hope you understand. Again, forgive me if I sound negative, I believe it's the fear and the loss of hope. Can one of you shine some positivity on this post?
Thanks in advance.
I have not been on this forum for many years when my brother was diagnosed. [He passed at age 50].
I have been living with the fear of ALS since childhood, and am now about to turn 60. I've lost more family members than I can count, including a cousin at age 21, so you can imagine the anxiety level. My dad was 57 when he passed, my grandmother was 59, uncle 69, cousin's in their 30's, I can go on but you get my point.
Curious as to what thoughts are; I am at a crossroads in my life. I have severe osteoarthritis in both knees, they will need to be replaced. I am scared because my brother had his hip replaced, and wound up getting als literally within months of surgery. So......what do I do? Is there any info on either anesthesia or major surgery triggering the gene? I've avoided genetic testing because there is no treatment and in my opinion no hope at this point. I've heard for 40 years that 'a cure is around the corner', and apologies if I sound bitter, I kind of am. I think most would be after losing 40+ family members so hope you understand. Again, forgive me if I sound negative, I believe it's the fear and the loss of hope. Can one of you shine some positivity on this post?
Thanks in advance.