juxtapoze1
New member
- Joined
- Mar 24, 2018
- Messages
- 5
- Reason
- CALS
- Diagnosis
- 10/2012
- Country
- US
- State
- ca
- City
- rancho palos verdes
Hello,
I am my mom's caregiver. She was diagnosed in 2012 and is now at this point fully disabled. We used to be able to communicate when she could use her eyes, but that was over a year ago. Unfortunately she can't close her left eye at all and she wears protective goggles and ointment 24/7, but her left eye has still gotten some scarring. What I need advice with is on wether she should get a partial or total tarsorrhaphy on her eye. Having her eyelid sewn at least partially shut would help stop any further damage and since I don't think she has any real vision with that eye I think I won't be taking away one of her senses. Although the procedure is apparently simple and reversible, I don't want to expose her to a (possibly unnecessary?) risk of infection or complications. Even with the procedure, she will most likely have to still wear goggles unless her eye is completely sewn shut. I'm really struggling with making this decision for her, she's always been so independent. I'm leaning towards leaving 'well enough' alone. Does anyone on this forum have experience with eye issues and/or tarsorrhaphy? Any advice would be greatly appreciated!
I am my mom's caregiver. She was diagnosed in 2012 and is now at this point fully disabled. We used to be able to communicate when she could use her eyes, but that was over a year ago. Unfortunately she can't close her left eye at all and she wears protective goggles and ointment 24/7, but her left eye has still gotten some scarring. What I need advice with is on wether she should get a partial or total tarsorrhaphy on her eye. Having her eyelid sewn at least partially shut would help stop any further damage and since I don't think she has any real vision with that eye I think I won't be taking away one of her senses. Although the procedure is apparently simple and reversible, I don't want to expose her to a (possibly unnecessary?) risk of infection or complications. Even with the procedure, she will most likely have to still wear goggles unless her eye is completely sewn shut. I'm really struggling with making this decision for her, she's always been so independent. I'm leaning towards leaving 'well enough' alone. Does anyone on this forum have experience with eye issues and/or tarsorrhaphy? Any advice would be greatly appreciated!