Now to change the subject slightly, onto mookies physical therapy....... I am away on a months holiday( actually sitting in heathrow lounge waiting for the 26 hours in the air,,) the purpose of my holiday was to spend each day physically pushing myself to the limit, without ant excuses like kids, work etc. My husband wanted to see how I was and decide whether he would take leave on our return. My disability seemed to be progressing and I was falling a bit.
On the fights over I got wheelchair assistance. I was in agony the first 4 days, but we walked everywhere. When I needed to rest, we rested. If I walked as slow as a snail at the end of the day, I still inched my way home. I have improved a little bit each day. My cane has not been used once.I have been at it for a month now and I cannot believe the difference.
Walking on cobbles and very uneven surfaces has improved my balance, I am more positive after all the trauma before I left, with my face cancer etc. I can get up a few more stairs and a bigger slope.
What I am trying to say is that you get a diagnosis of a progressive disease and you start to focus on the disease, how you are doing each day, am I worse? Blah blah blah. It starts to define you. The exercise has been amazing and I will keep it up when I get home.
I also had a chance to evaluate the Baclofen, doing the same kind of things each day. I broke the doses down into 4 x day instead of 3. This helped free me up to keep walking..
So.... Go the physical therapy, and try the uneven surfaces for balance.
I am about to board mt Air New Zealanf flight for home. It's a huge walk, but I am going to do it on my own. I cancelled the wheelchair. ( I will just leave 10 mins before everyone else)
As for the neck, well I have a 2 bone grafts and a big titanium plate! How's that for getting it wrong. The discs were not causing my arm weakness after all. Well you have to laugh.
Jonny just been talking to a nice man from Dinas Powys. You welsh chaps are sooooo charming.
Aly the far too talkative person!