Jon1950
New member
- Joined
- Feb 24, 2021
- Messages
- 2
- Reason
- DX MND
- Diagnosis
- 12/2020
- Country
- US
- State
- VA
- City
- Ashland
I am a 70 year old male, and my neurologist has diagnosed me with isolated motor neuron disease, which has been confirmed by a second opinion. Both neurologists believe that it is likely to be ALS, but it cannot be definitively confirmed except by seeing how it progresses. It presented as atrophy of the neck extensor muscles (dropped head syndrome) and so far, although I am experiencing some generalized weakness, atrophy has not been confirmed in other muscle groups. If any members have ALS that began in the neck extensor muscles, I would be very interested in how it has progressed.