- Jan 7, 2012
- Lost a loved one
My husband has Bulbar onset ALS. I'm noticing his whole neck and jaw area getting thinner, flabby skin under neck, too. He's also having Charlie horses in his neck. Will he lose the ability to hold up his head? Does it sound like this will be soon? He's otherwise very mobile. Has anyone else experienced this with bulbar onset?. Is a neck brace in the near future? Thanks!