National ALS registry

[hjlindley]

I am sure many of you PALS have already done this registration, but the more of us that fill it out, the closer we get to causes, and treatments. I know it takes a while, but it will be worth it to all of us to do so.

One day at a time.:smile:

CDC - Amyotrophic Lateral Sclerosis (ALS)
1-800-232-4636

 

[TedH5]

Right now you have to update your password every 90 days. Myself and some other PALS have spoken with them and they will soon be changing it to every 6 months. That was the best we could do because the CDC has strict security regulations.

 

[hjlindley]

Great!
Typing gets harder for me by the day, and, I am sure, is impossible for many already. One day at a a time!

 

[Sequoia]

Thanks for re-posting this as a reminder!