twinmommie72
Distinguished member
- Joined
- Jul 27, 2010
- Messages
- 132
- Reason
- PALS
- Diagnosis
- 08/2010
- Country
- US
- State
- Va
- City
- Southern
Hi there... I've been in a whirlwind of docs/testing since May and wanted to see if someone could shed some light on a few things. I began with slurring words back in feb/march this year and saw a Neuro that said it was merely stress from a horrible divorce I was going through. Saw another Neuro that says its his belief that it is ALS. So many crazy factors began weighing in like the Mirena IUD I had placed back in Nov 2009. I researched and found so many women with the same symptoms as me. The 2nd Neuro not believing it has anything to do with what his belief is.
I had an extended member of my family send me a letter wishing me well and also giving me a glimpse into my Fathers childhood. My father passed 7 years ago. His mother passed away when he was 5 back in the 1950's. I always heard she died from Pneumonia, but in the letter she stated that she was diagnosed with Myasthenia Gravis and died with complications that lead to Pneumonia.
I guess my question is how is the testing different in diagnosing both. Could this be a genetic cause? Just like her I began with speech problems. I had a swallowing test that was normal but swallowing piils tends to be a stresser. Also found the the Mirena has been releasing silicone into the bloodstream.
I just have to wonder had I never had the Mirena placed would this be happening, or is my findings of my grandmother whom I never knew be a clue to all of this.
Sorry to be long winded....thank you for reading.
Hugs
I had an extended member of my family send me a letter wishing me well and also giving me a glimpse into my Fathers childhood. My father passed 7 years ago. His mother passed away when he was 5 back in the 1950's. I always heard she died from Pneumonia, but in the letter she stated that she was diagnosed with Myasthenia Gravis and died with complications that lead to Pneumonia.
I guess my question is how is the testing different in diagnosing both. Could this be a genetic cause? Just like her I began with speech problems. I had a swallowing test that was normal but swallowing piils tends to be a stresser. Also found the the Mirena has been releasing silicone into the bloodstream.
I just have to wonder had I never had the Mirena placed would this be happening, or is my findings of my grandmother whom I never knew be a clue to all of this.
Sorry to be long winded....thank you for reading.
Hugs