mytmouz
Active member
- Joined
- Aug 17, 2019
- Messages
- 95
- Reason
- PALS
- Diagnosis
- 07/2019
- Country
- US
- State
- MS
- City
- Pelahatchie
I have been lurking for a while, but decided to join in. I was officially diagnosed 3 weeks ago. My local neurologist and I suspected as much, but treated for CIDP until it could be confirmed. He sent me for a referral ah UAB, and they did a 3rd EMS, which confirmed it. I had other issues, such as a vitamin B1 deficiency, diabetes, which had started back up, unbeknownst to me, and I had a fall in which I broke the L3 lower lumbar, and jammed a vertebrae in my neck. I ended up tripping a couple of months after that, which may have been my first drop foot episode, and cracked both knee caps. The fall was 1017, and the possible drip foot appearance was 01/16/18 . I did not know I had the fractures as I did not visit the Dr. Too busy working, they were found on my initial MRI's.
I thought the occasional drop foot issues were due to my sore back and knees. I was limping heavily on my right leg at this point. I had 2 weeks of on the job classroom training, and a weeks vacation, this allowed the breaks to heal, but I noticed the limp, and made a Dr. appointment. Before the appointment date, I returned to work, and could no longer climb a ladder, so I left and went to my GO, who told me to go to the ER, and tell them I had a neurological issue. 13 hours later I got my MRI's, and a referral to my first neurologist, in 6 weeks. I didn't care foe her, as she wasn't listening, fortunately, she stopped practicing in that office, and I got my current neurologist.
I was sent home from work on 08/102018. I limped out, but I was walking. In a week, I was on a cane. Started pt , and vitamin and diabetic regimen, and put the cane down mid Sept. The therapist and I thought end of Oct. I would be well. I than started progressing downhill. Mid Oct, I was back on the cane, by 2nd of Nov, I was using a walker, and by mid January, I was in a wheel chair for any distance. It seems like a 6 week cycle, roughly, on the progression. My left leg hadn't much issue prior to march of this year, it is worse than the right now. Neither work below the need. I have A power chair and. Hospital bed that lift, I can stand with a walker when they lift, and shuffle 90 degrees to transfer from one to the other, that is the extend of my mobility.
The EMS done 3 weeks ago shows some progression in my right arm and hand as well. Looks like it is determined to take me out, as I am determined to stay...
One I had the confirmation, I felt better. I didn't think U was stressed, but I was trying to come up with options.
Thanks for the vent, it seems to be hard on my family to talk about, which I understand...
I thought the occasional drop foot issues were due to my sore back and knees. I was limping heavily on my right leg at this point. I had 2 weeks of on the job classroom training, and a weeks vacation, this allowed the breaks to heal, but I noticed the limp, and made a Dr. appointment. Before the appointment date, I returned to work, and could no longer climb a ladder, so I left and went to my GO, who told me to go to the ER, and tell them I had a neurological issue. 13 hours later I got my MRI's, and a referral to my first neurologist, in 6 weeks. I didn't care foe her, as she wasn't listening, fortunately, she stopped practicing in that office, and I got my current neurologist.
I was sent home from work on 08/102018. I limped out, but I was walking. In a week, I was on a cane. Started pt , and vitamin and diabetic regimen, and put the cane down mid Sept. The therapist and I thought end of Oct. I would be well. I than started progressing downhill. Mid Oct, I was back on the cane, by 2nd of Nov, I was using a walker, and by mid January, I was in a wheel chair for any distance. It seems like a 6 week cycle, roughly, on the progression. My left leg hadn't much issue prior to march of this year, it is worse than the right now. Neither work below the need. I have A power chair and. Hospital bed that lift, I can stand with a walker when they lift, and shuffle 90 degrees to transfer from one to the other, that is the extend of my mobility.
The EMS done 3 weeks ago shows some progression in my right arm and hand as well. Looks like it is determined to take me out, as I am determined to stay...
One I had the confirmation, I felt better. I didn't think U was stressed, but I was trying to come up with options.
Thanks for the vent, it seems to be hard on my family to talk about, which I understand...