ZenArcher
Senior member
- Joined
- Feb 22, 2007
- Messages
- 676
- Reason
- PALS
- Diagnosis
- 02/2007
- Country
- US
- State
- PA
- City
- McEwensville
You know what pisses me off? If I ask 50 people on the street what ALS is I'd probably get 5 that could tell me what it stands for or know Lou Gehrig's. Out of those maybe 2 that actually know something about the disease. That isn't the problem that is part of our job now; to educate.
What is the problem is that for the last year I've been writing to TV shows and news programs, etc trying to get air time for ALS to no avail. Yet what Earth shattering news do I see this morning on Good Morning America; Miley Cyrus didn't wear a seatbelt and the facts around seatbelt related deaths followed closely by the fact that Aretha Franklin is upset because Beyonce called Tina Turner the "Queen of Soul". For some reason it touched a nerve this morning so me being me; I go to the GMA web page to explain my ire. Well that only made things worse because they are kind enough to give me 500 characters to do so. So now I have about 4 - 5 sentences to explain myself. That just made me angrier. Well I managed to get the point across without too much venom and in 496 characters.
What is it that we need to do to get the slightest acknowledgment from the news/talk shows? I mean we have stories that will make you cry, stories that will make you laugh, people that have shown more courage and strength than any Survivor winner, we have controversy, hope and humanity. What is it exactly that we're missing that we can't even get a 5 minute spot on the local news.
Ok, now I feel better although as I was typing this they had another important story about a $1.8 million dress that weighed so much they had to do the photo shoot in short intervals. Oh well the fight continues; It is better to die fighting than live fleeing.
What is the problem is that for the last year I've been writing to TV shows and news programs, etc trying to get air time for ALS to no avail. Yet what Earth shattering news do I see this morning on Good Morning America; Miley Cyrus didn't wear a seatbelt and the facts around seatbelt related deaths followed closely by the fact that Aretha Franklin is upset because Beyonce called Tina Turner the "Queen of Soul". For some reason it touched a nerve this morning so me being me; I go to the GMA web page to explain my ire. Well that only made things worse because they are kind enough to give me 500 characters to do so. So now I have about 4 - 5 sentences to explain myself. That just made me angrier. Well I managed to get the point across without too much venom and in 496 characters.
What is it that we need to do to get the slightest acknowledgment from the news/talk shows? I mean we have stories that will make you cry, stories that will make you laugh, people that have shown more courage and strength than any Survivor winner, we have controversy, hope and humanity. What is it exactly that we're missing that we can't even get a 5 minute spot on the local news.
Ok, now I feel better although as I was typing this they had another important story about a $1.8 million dress that weighed so much they had to do the photo shoot in short intervals. Oh well the fight continues; It is better to die fighting than live fleeing.