Miggy87
Member
- Joined
- Nov 29, 2020
- Messages
- 19
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- CA
- City
- San Francisco
Previous threads:
Posted a few months ago but thread got closed wanted to update since finally I got a new dr .
my symptoms
August 2020 - ER after stomach discomfort , no pain just discomfort felt like a stomach flu this lasted a month . This was the beginning of my mysterious illness . Dr thought might be GERD . Lots of burping
September 2020 - started getting dizziness and light headedness , daily . DR ran tests eliminated orthostatic hypotension . Vitamin b12 came out good . Simple heart tests came out ok. Vitamin D was low . CT scan without contrast came out clean . I must admit the fact that all this tests kept coming clean is what made me more anxious than I have ever been .
october 2020 - started getting neck discomfort . Originally I thought I had circulation problems even a clot on neck or somewhere since the light headedness felt weird and wouldn’t go away . Had a life insurance from work ran a bunch of t
ests diabetes to anemia to thyroid . Blood count and what not . Came out clean with blood pressure going on . Suddenly I started having twitches all over my body however more focused on calf’s .
November 2020 - went to ER because the neck pain was shark . It was on my side of neck under jaw . 1 to 10 it was a solid 8. Dr thought could have been a rupture because pain was sharp however I could move my head left and right so he concluded it was just a muscle . Later that month I started having a buzz and tingling sensation on my left middle toe finger. And calf pain and ache . Would wake up as if I had ran a mile .
December to present . Twitching continue , if I stare at my calf’s I can see them ripple and small twitches . Here and there I get big thumpers on arms , very rare on temple and neck sometimes even stomach and back. But legs are daily throughout the day . Can feel this more when I’m resting . After eliminating so many thing ALS is what came to mind . Even Parkinson’s .
do I have clinical weakness ? Not that I know of . Read here many people weren’t aware of their clinical weakness in some areas until drs pointed out .
Some day’s I do feel better than others . Read it’s common in ALS eary symptoms.
I do feel a tight throat and neck . Shoulder blades feel sore . Bubbly frog moose feeling out my throat to mouth.
What the hell could it be , what is wrong with me .
Here’s the update . My dr refused months ago to give me a mri , EGm , suggested anxiety was making me feel worse than I really was . However I used to go to the gym prior to this. I used to feel ok . My symptoms are real I’m aware of how I feel and I know something is not right !!! So when I went to see him for neck discomfort and he dismissed it I did what no one should ever do. I lost it and cussed him out , lol . We went at it I ended up getting the police to escort me out . I felt bad so I emailed him I sincerely apologized , he apologized first .
kaiser permanente assigned me a new primary care dr , and finally today he ordered an eloctrolyte test , b1 and a whole bunch of other tests which he says it’s a start and we go from there . I have an in office appointment Monday and he said we will go from there .
Guys , it feels like all the common illnesses are ruled out and that makes me anxious . I with a lot of gratitude ask you guys one more time for suggestions . Can it be ALS or a slow progressing type .
Attachment - tests dr ordered today
Weird neck symptoms
Hello I’m 33 , I am experiencing muscle twitches all over body and my muscles feel weak . I’m getting aches in my arm muscle , neck muscle pain is irritating . Wouldn’t say too painful but like a 4 . Few weeks ago felt like it was hard to keep my jaw close but at night it felt like it would open...
www.alsforums.com
Als concerns
Hello guys . I’ve had a different thread but got closed . I was anxious and could t really explain my concerns well . Mentally wise I’m doing ok I take Zoloft and had counseling for anxiety and that’s calm me down . However im concern about my symptoms because it somewhat points to ALS . ive...
www.alsforums.com
Posted a few months ago but thread got closed wanted to update since finally I got a new dr .
my symptoms
August 2020 - ER after stomach discomfort , no pain just discomfort felt like a stomach flu this lasted a month . This was the beginning of my mysterious illness . Dr thought might be GERD . Lots of burping
September 2020 - started getting dizziness and light headedness , daily . DR ran tests eliminated orthostatic hypotension . Vitamin b12 came out good . Simple heart tests came out ok. Vitamin D was low . CT scan without contrast came out clean . I must admit the fact that all this tests kept coming clean is what made me more anxious than I have ever been .
october 2020 - started getting neck discomfort . Originally I thought I had circulation problems even a clot on neck or somewhere since the light headedness felt weird and wouldn’t go away . Had a life insurance from work ran a bunch of t
ests diabetes to anemia to thyroid . Blood count and what not . Came out clean with blood pressure going on . Suddenly I started having twitches all over my body however more focused on calf’s .
November 2020 - went to ER because the neck pain was shark . It was on my side of neck under jaw . 1 to 10 it was a solid 8. Dr thought could have been a rupture because pain was sharp however I could move my head left and right so he concluded it was just a muscle . Later that month I started having a buzz and tingling sensation on my left middle toe finger. And calf pain and ache . Would wake up as if I had ran a mile .
December to present . Twitching continue , if I stare at my calf’s I can see them ripple and small twitches . Here and there I get big thumpers on arms , very rare on temple and neck sometimes even stomach and back. But legs are daily throughout the day . Can feel this more when I’m resting . After eliminating so many thing ALS is what came to mind . Even Parkinson’s .
do I have clinical weakness ? Not that I know of . Read here many people weren’t aware of their clinical weakness in some areas until drs pointed out .
Some day’s I do feel better than others . Read it’s common in ALS eary symptoms.
I do feel a tight throat and neck . Shoulder blades feel sore . Bubbly frog moose feeling out my throat to mouth.
What the hell could it be , what is wrong with me .
Here’s the update . My dr refused months ago to give me a mri , EGm , suggested anxiety was making me feel worse than I really was . However I used to go to the gym prior to this. I used to feel ok . My symptoms are real I’m aware of how I feel and I know something is not right !!! So when I went to see him for neck discomfort and he dismissed it I did what no one should ever do. I lost it and cussed him out , lol . We went at it I ended up getting the police to escort me out . I felt bad so I emailed him I sincerely apologized , he apologized first .
kaiser permanente assigned me a new primary care dr , and finally today he ordered an eloctrolyte test , b1 and a whole bunch of other tests which he says it’s a start and we go from there . I have an in office appointment Monday and he said we will go from there .
Guys , it feels like all the common illnesses are ruled out and that makes me anxious . I with a lot of gratitude ask you guys one more time for suggestions . Can it be ALS or a slow progressing type .
Attachment - tests dr ordered today
Attachments
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