JTTP

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Hello, first of all thank you for letting me join this forum.

I’ve been dealing with some symptoms in the last month and I wanted to ask your opinnion about it. I’m 40.

For some time I had some numbness in my hands, legs and upper lip so I had an appointment with neuro to see if something happened.

Neuro told me not to worry and asked for an MRI on Feb 1st.

On Feb 2nd I had lots of events through the day and at night I felt soreness in my legs.

That soreness didn’t dissappeared and on Feb 4th, after a long day, I started twitching and ha OMG little cramps so much I couldn’t alero so well.

That week was a little nightmare, lots of stiffness, twitching (specially in legs, calfs and arms) and I started notice I’ve lost some hability in doing things with my right (dominant) hand, specially with the ring and pinky finger. I googleized my symptoms and the word “ALS” appeared all the way.

I felt so bad on Feb 9th I went to the hospital and after a blood test (with CK level ok) and some basic tests they sent me home saying it was all due to anxiety.

On Feb 11th I went to my 2nd appointment with the neuro. He told me the craneal MRI was ok. I told him about the new symptoms and my fears about having ALS. He made some test on my feet and tried to see the twitching hitting here and there. He couldn’t see it, told me to forget about ALS and prescript me alprazolam for the next weeks. I asked him about if an EMG was needed but he said “no, it’s anxiety, you don’t have ALS”.

Symptoms stayed with me until the 3rd appointment with neuro, on March 4th. I told him I had less twitching but that symptoms stayed. He told me not to worry again and prescripted me vortioxetine, an antidepressant. Told me as well to take alprazolam only at night.

All the symptoms stay there, sometimes I feel that it’s hard to speak as well. And yesterday I took some bags with my right arm and I had spasticity and pain on my biceps, leaving my arm with a 90 degrees angle. Some hours later my arm is more or less ok again but stills aching. I have pain on arms, legs, fingers, shoulders... I feel little cramps on my feet and legs. And twitching keeps there on my legs and my right arm now.

I am so worried about ALS, I want to have a new appointment with neuro and ask about doing an EMG, but I’m so afraid now. If some of you can tuve me some advice.
 

ShiftKicker

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Please read here: https://www.alsforums.com/forum/do-i-have-als-als/26591-read-before-posting-answers-common-concerns-about-possible-symptoms.html It addresses such things as numbness, tingling, pain- none of which are part of the normal constellation of symptoms that indicate ALS. Twitching is as general as coughing, and could mean absolutely nothing, or any other number of issues.

A neurologist has told you no ALS- there is no one else more qualified to tell you so. Maybe make an appointment with your doctor to get to the bottom of your symptoms, including properly addressing your anxiety, but ALS should not be in your thoughts.
 

JTTP

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Thanks for the answer. The issue is that numbness was previous to fasciculations (twitching). And this constant pain in calfs, right arm and right hand is driving me nuts...
 

ShiftKicker

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Then please go back to address it with the doctor. Lots of things can be done for that- but a forum for people with ALS really is not going to help for that. That's for the doctor to assist you with.
 

JTTP

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Yesterday they made an ultrasound test on the arm that I couldn’t move the other day from the 90 degrees position and they told me muscle was ok but that I had tendinitis. Can it be related with the spasticity usually associated with ALS?
 

Clearwater AL

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JTTP, you were told it is tendinitis. That is the diagnosis.

Again, as very knowledgeable members have replied above, these are issues
you need to consult with your doctor.

Please read the "Important - Read First Before Posting" at the top of the
page where you start a thread.

Let your doctors decide of you are anywhere near a consideration of
a possible MND in the future... from what you have written it is very
very unlikely.
 

JTTP

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Thanks, I’ve got an appointment with neuro for the next week. Today I realized I can’t stand on my right foot without trembling and my ankle feels very loose, thinking this can be drop foot. Hope neuro sends me to get an EMG test done...
 

ShiftKicker

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Please come back after your exam to let us know how it goes. At this point, you are assuming something that is definitely not drop foot. "Loose" is not what drop foot is. I am hoping you will be reassured by what the specialist tells you next week. Till then, it's best you do not continue to post speculations here.
 

Bestfriends14

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NOT describing drop foot in the least. I hope for the sake of your mental well being, you'll believe the neuro when they tell you thar you do not have ALS.
 

JTTP

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Hello again. I went to the neuro yesterday. I told him about all my symptoms and told me not to worry about them. Asked me to walk on my toes and heels, tried to look for fasciculations and testes my reflexes. Nothing abnormal on his oppinion but suggested me to meet him again in one month and doing an EMG, although he said not to worry again.

At this moment I got much less fascics on my body, mainly on my calves and knees. But today I realized my second toe on my right foot is much weaker than the one on my left foot. It’s less resistant to presssure. Can it be a signal or the start of something leading to clinical weakness or foot drop?

Thanks in advance.
 

Clearwater AL

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JTTP, you are burdened with fear. Maybe this will help and for others who post
in situations of dealing with fear. Some may feel this is out of place but that is
for debate.

There is a scenario called hypochondriasis. A person scaring themselves.

You are being convinced that your symptoms are caused by a terminal medical disease…
you become anxious and obsessed with frequently checking your symptoms. As this cycle
goes on… this fear creates dopamine in your brain.

As your hypochondriasis continues over time your brain may actually get
like an addiction for more. The cycle continues.

Thus, you visit doctors repeatedly despite tests showing that everything indicates
you do not have ALS. You may have other issues but your brain keeps
pulling you back to ALS.

You can help yourself break this cycle of fear by logging off this Forum and
work with your doctors. And… consider telling your Neuro you are having a
hard time letting go of ALS.

Hope your doctors help you onto the path of good health. Let ALS go.
 
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