Hamitic
New member
- Joined
- Jan 4, 2023
- Messages
- 3
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- IR
- State
- TH
- City
- Tehran
I'm a 26 years old male. I have some symptoms for 4 months now and I'm really scared about having ALS/MND. I have read a lot about symptoms here and I just wanted to hear more as my worries are raising.
About 5 months ago, I saw my right leg thigh shaking when I used to contract the muscle. I ignored it. A week later, I had muscle twitching: 1 day at my right hand. 1 day aty right foot. 1 or 2 days at my left hand and left foot. I think the twitching continued for a weak or two. I felt a very slight weakness in those areas after.
One week later, I had stomach cramps and pain. I had diarrhea then for half a day. Then I noticed weakness in my both legs. I thought it's just a dehydration and I ignored it.
1 months passed and I still felt the weakness in my legs whenever I was walking. With every step I felt like shaky. I couldn't stand still for long and I had to sit or walk to reduce the weakness feeling. My Neuro gave me magnesium, vit A, vit D, vit E and vit B. I startes taking the vitamins. Nothing changed.
I had an EMG, brain and neck MRI, and blood tests 45 days ago. All came back normal except vit D defecency, and a small none-specefic white matter lesion in brain that my doc said that's normal.
During the last 45 days, I still have weakness in my legs and also in my hands (first my right and now my left hand). I started twitching again for a week now (first my right leg - then left leg - then right back - some at hands). I have feet muscles cramps now when I walk too much (for example 8000 steps day).
I noticed my right foot calf muscle (where it twitched for 2 days) is slightly reduced comparing to left muscle. And an extreme fatigue when I'm trying to run for even 2 minutes that I can't continue.
And it's a week I have hand tremors and rest and a vibration sensation on my right side when I lay on my right.
My Neuro requested a 4 limb emg yesterday again. It came back normal. Even any fasciculations! I have like 200 fasciculation a day and no one where detected.
My Neuro checked my feet reflexes and said it's normal. And foot sole test was normal. She said there's no clinical weakness.
But I now how extremely I feel weak when I'm walking. How really it's really causing fatigue when I'm holding my mobile phone now. It was just feet at first. Now my hands. And I feel my right leg is actually weaker than left now. With visible atrophy!
So. I know this is embarrassing but I'm like those guys who think "what if my next emg shows als? Why I'm not feeling better? Why I feel weaker and weaker in this 4 months? Why I feel shaky when I'm moving down and up the steps?"
I have attached the emg results as I can't anlyse it. Hope to hear from you.
Thank you.
About 5 months ago, I saw my right leg thigh shaking when I used to contract the muscle. I ignored it. A week later, I had muscle twitching: 1 day at my right hand. 1 day aty right foot. 1 or 2 days at my left hand and left foot. I think the twitching continued for a weak or two. I felt a very slight weakness in those areas after.
One week later, I had stomach cramps and pain. I had diarrhea then for half a day. Then I noticed weakness in my both legs. I thought it's just a dehydration and I ignored it.
1 months passed and I still felt the weakness in my legs whenever I was walking. With every step I felt like shaky. I couldn't stand still for long and I had to sit or walk to reduce the weakness feeling. My Neuro gave me magnesium, vit A, vit D, vit E and vit B. I startes taking the vitamins. Nothing changed.
I had an EMG, brain and neck MRI, and blood tests 45 days ago. All came back normal except vit D defecency, and a small none-specefic white matter lesion in brain that my doc said that's normal.
During the last 45 days, I still have weakness in my legs and also in my hands (first my right and now my left hand). I started twitching again for a week now (first my right leg - then left leg - then right back - some at hands). I have feet muscles cramps now when I walk too much (for example 8000 steps day).
I noticed my right foot calf muscle (where it twitched for 2 days) is slightly reduced comparing to left muscle. And an extreme fatigue when I'm trying to run for even 2 minutes that I can't continue.
And it's a week I have hand tremors and rest and a vibration sensation on my right side when I lay on my right.
My Neuro requested a 4 limb emg yesterday again. It came back normal. Even any fasciculations! I have like 200 fasciculation a day and no one where detected.
My Neuro checked my feet reflexes and said it's normal. And foot sole test was normal. She said there's no clinical weakness.
But I now how extremely I feel weak when I'm walking. How really it's really causing fatigue when I'm holding my mobile phone now. It was just feet at first. Now my hands. And I feel my right leg is actually weaker than left now. With visible atrophy!
So. I know this is embarrassing but I'm like those guys who think "what if my next emg shows als? Why I'm not feeling better? Why I feel weaker and weaker in this 4 months? Why I feel shaky when I'm moving down and up the steps?"
I have attached the emg results as I can't anlyse it. Hope to hear from you.
Thank you.