ph115
New member
- Joined
- Oct 21, 2020
- Messages
- 9
- Reason
- PALS
- Diagnosis
- 06/2020
- Country
- US
- State
- GA
- City
- Lilburn
I was diagnosed on June 2, 2020 with ALS after being misdiagnosed for one and 1/2 years. Two orthopedic doctors, one physician’s assistant and two orthopedic surgeons all said I had spinal issues causing weakness in my hands and pain when walking. I actually had cervical spine surgery February 2020 for hand weakness. It was successful for two weeks and then started with the weakness again. That’s when Covid arrived and I was unable to get back to my doctor and had to do teleconferencing. Finally when Emory opened up I was able to have two MRIs which showed my spine was fine and was advised to see a neurologist. I was fortunate to get an appointment with Dr. Jonathan Glass who is the doctor in charge of the ALS Clinic in Atlanta in just a few weeks and was diagnosed that day with ALS.
Our daughter passed away in 2016 after fighting ALS for eight years. She was only 47 when she passed away but I’m now 81 and never thought I would get this horrible disease.
Our son and daughter-in-law sold their house and moved in with us to care for us. Our son got laid off last October due to Covid cut back and is now here all day with us. We want to go for one last vacation from Atlanta where we live to southern New Hampshire where we have relatives. (Hubby is disabled due to mini strokes during bypass surgery.)
I have hand and arm weakness and can no longer type on my laptop. I can eat holding my fork but it’s getting difficult and sometimes I end up having to be fed. I can no longer stand on my own or walk but I am able to have my son lift me from my recliner and I hold on to a rail while he moves the walker or rolling potty/shower chair in back of m.
We have a Honda Odyssey minivan but not a handicap van. Our son hates driving these handicap vans because he says it’s like driving a Mack truck. He’s trying to figure out a way to get me in and out of the van so that I can sit in one of the backseats. I have an electric wheelchair but it weighs 500 pounds and there’s no way to get me into the van while sitting in the wheelchair. I’m sure he can figure out how to get me in and out of the van but the one problem I’m having is a hotel to stay in at night and probably two nights. I sleep in a lift recliner at home But don’t know of any hotels that have recliners. I would appreciate it if anybody knows of a chain that carries these.
Our daughter passed away in 2016 after fighting ALS for eight years. She was only 47 when she passed away but I’m now 81 and never thought I would get this horrible disease.
Our son and daughter-in-law sold their house and moved in with us to care for us. Our son got laid off last October due to Covid cut back and is now here all day with us. We want to go for one last vacation from Atlanta where we live to southern New Hampshire where we have relatives. (Hubby is disabled due to mini strokes during bypass surgery.)
I have hand and arm weakness and can no longer type on my laptop. I can eat holding my fork but it’s getting difficult and sometimes I end up having to be fed. I can no longer stand on my own or walk but I am able to have my son lift me from my recliner and I hold on to a rail while he moves the walker or rolling potty/shower chair in back of m.
We have a Honda Odyssey minivan but not a handicap van. Our son hates driving these handicap vans because he says it’s like driving a Mack truck. He’s trying to figure out a way to get me in and out of the van so that I can sit in one of the backseats. I have an electric wheelchair but it weighs 500 pounds and there’s no way to get me into the van while sitting in the wheelchair. I’m sure he can figure out how to get me in and out of the van but the one problem I’m having is a hotel to stay in at night and probably two nights. I sleep in a lift recliner at home But don’t know of any hotels that have recliners. I would appreciate it if anybody knows of a chain that carries these.