sophieg
New member
- Joined
- Jul 7, 2020
- Messages
- 2
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- UK
- State
- NA
- City
- N/A
Hello everyone.
I'm a little nervous to be posting this but here goes. I am genuinely sorry to be bothering you all - I've read quite a few threads over the last few days and the stickies did quite a bit to alleviate my fears. And yet, here we are. I'm a women in her mid 30s.
This all started back in November when I noticed that my right leg muscle felt quite odd, and that It always seemed to be quite tight. I walk a lot, I run, I have an active job so I put it down to nothing. But the feeling never really went away. I noticed that it became quite painful to walk and that my leg/foot felt heavy. I would sometimes get this hideous cramping in my right calf muscle and foot. In february I started to get persistent shoulder and arm pain on my right side that made it difficult for me to do anything for very long. It felt quite strange, like pins and needles.
I developed a burning feeling in the base of my feet and hands. And then the twitching started. (Which naturally lead me to Dr Google - sorry in advance - and then to my GP). I explained that I seemed to be getting almost constant, I can't even describe it, twitching of my muscles that can almost move one a finger, or my hand. This has been happening since mid-march. These mainly happen at rest. I know the fact that the twitching is in multiple locations - both feet, both hands, my right shoulder and both legs - is a good sign. The twitching in my right leg is the most worrying - as that's where i get the cramping and that's where the perceived weakness has been for the longest. It feels like a tight muscle tense and it's very worrying. I have also become aware that I seem to be scuffing my right foot a lot and that my right leg and arm seem weak. I have dropped a few things, but seem to be able to complete tasks. It's idiotic that I never linked the hip and shoulder pain to weakness earlier and am actually quite annoyed with myself for it.
I also developed some breathing issues in march - a clear chest x-ray was the result of that. It's being put down to my acid reflux but that's made me go. Hmm.
The neurologist did an evaluation and didn't make any comment on my reflexes and strength. I asked if everything was normal, she said yes. She conducted an MRI at this stage, which came back clear. She then decided to conduct an EMG although she suggested that she wasn't expecting to find much. Which, I know, I should take great comfort in. I am just concerned that I haven't expressed myself clearly enough to her regarding my weakness. I was quite flappy and don't think I expressed my issues around my feet or walking clearly enough. Or the timeline. However, she did make me stand on my heels ext.
I know that all the right things are being done, and I also know that if the EMG comes back clear then I don't need to worry. From everyone on this forum I get that a clean exam + a clean EMG is a good indicator. I'm just concerned about the wait, concerned about the future, and concerned about what all of this means. I am due to speak to her again this week and, since i had quite a rough weekend with the twitching, I don't quite know what to say to her.
I'm a little nervous to be posting this but here goes. I am genuinely sorry to be bothering you all - I've read quite a few threads over the last few days and the stickies did quite a bit to alleviate my fears. And yet, here we are. I'm a women in her mid 30s.
This all started back in November when I noticed that my right leg muscle felt quite odd, and that It always seemed to be quite tight. I walk a lot, I run, I have an active job so I put it down to nothing. But the feeling never really went away. I noticed that it became quite painful to walk and that my leg/foot felt heavy. I would sometimes get this hideous cramping in my right calf muscle and foot. In february I started to get persistent shoulder and arm pain on my right side that made it difficult for me to do anything for very long. It felt quite strange, like pins and needles.
I developed a burning feeling in the base of my feet and hands. And then the twitching started. (Which naturally lead me to Dr Google - sorry in advance - and then to my GP). I explained that I seemed to be getting almost constant, I can't even describe it, twitching of my muscles that can almost move one a finger, or my hand. This has been happening since mid-march. These mainly happen at rest. I know the fact that the twitching is in multiple locations - both feet, both hands, my right shoulder and both legs - is a good sign. The twitching in my right leg is the most worrying - as that's where i get the cramping and that's where the perceived weakness has been for the longest. It feels like a tight muscle tense and it's very worrying. I have also become aware that I seem to be scuffing my right foot a lot and that my right leg and arm seem weak. I have dropped a few things, but seem to be able to complete tasks. It's idiotic that I never linked the hip and shoulder pain to weakness earlier and am actually quite annoyed with myself for it.
I also developed some breathing issues in march - a clear chest x-ray was the result of that. It's being put down to my acid reflux but that's made me go. Hmm.
The neurologist did an evaluation and didn't make any comment on my reflexes and strength. I asked if everything was normal, she said yes. She conducted an MRI at this stage, which came back clear. She then decided to conduct an EMG although she suggested that she wasn't expecting to find much. Which, I know, I should take great comfort in. I am just concerned that I haven't expressed myself clearly enough to her regarding my weakness. I was quite flappy and don't think I expressed my issues around my feet or walking clearly enough. Or the timeline. However, she did make me stand on my heels ext.
I know that all the right things are being done, and I also know that if the EMG comes back clear then I don't need to worry. From everyone on this forum I get that a clean exam + a clean EMG is a good indicator. I'm just concerned about the wait, concerned about the future, and concerned about what all of this means. I am due to speak to her again this week and, since i had quite a rough weekend with the twitching, I don't quite know what to say to her.
