teresa
New member
- Joined
- Jun 6, 2007
- Messages
- 8
- Reason
- Loved one DX
- Country
- CA
- State
- ontario
- City
- Bradford
(does anyone know what the genetic test is called?)
In 1989 my brother's muscles started wasting, he would be crawling to get up the stairs... within months he dropped from 180lbs to 80lbs (he was 6'1). we never got a definative diagnosis.. they did all the tests. he passed away when he was 20. it was really quick, i never got over that, i don't think i ever will. he was my best friend.
my mom's doctors after complete testing thinks it is als.. her legs started weakening about 8 years ago, currently she is confined to a wheelchair. the muscles around her spine are going, she can hardly pick up anything with her hands... she chokes alot..
my parents are planning to move back to canada and i don't know where to find information or help. i looking for an extremely affordable van to transport my mom, i also need a place for her to stay.. i can't afford to renovate my home(although i would love to) to accomodate her needs. my mom is in her 50's, we have a great relationship, i need her to be close to me and my family. i have 2 kids that need to see what a great, loving and kind soul their grandmother is.
she's accepted the obvious, she doesn't want any tubes or life support of any kind. we have discussions of these types of things more often then i would like, my heart literally rips each time she brings it up. i cry all the time...
i don't expect any replies, it's just good enough being able to let it out and have a good cry
thanks
In 1989 my brother's muscles started wasting, he would be crawling to get up the stairs... within months he dropped from 180lbs to 80lbs (he was 6'1). we never got a definative diagnosis.. they did all the tests. he passed away when he was 20. it was really quick, i never got over that, i don't think i ever will. he was my best friend.
my mom's doctors after complete testing thinks it is als.. her legs started weakening about 8 years ago, currently she is confined to a wheelchair. the muscles around her spine are going, she can hardly pick up anything with her hands... she chokes alot..
my parents are planning to move back to canada and i don't know where to find information or help. i looking for an extremely affordable van to transport my mom, i also need a place for her to stay.. i can't afford to renovate my home(although i would love to) to accomodate her needs. my mom is in her 50's, we have a great relationship, i need her to be close to me and my family. i have 2 kids that need to see what a great, loving and kind soul their grandmother is.
she's accepted the obvious, she doesn't want any tubes or life support of any kind. we have discussions of these types of things more often then i would like, my heart literally rips each time she brings it up. i cry all the time...
i don't expect any replies, it's just good enough being able to let it out and have a good cry
thanks