oo1984
New member
- Joined
- Feb 18, 2014
- Messages
- 3
- Reason
- Learn about ALS
- Country
- FIN
- State
- western-finland
- City
- tku
Hello wonderfull forum! I am a 29o male. I had some throat problems last year due singing and occational shouting. On january I started notising buubling sensation and twitching on my right lower side. Twitching is almot constant. Usually in the same place but occationally few beats almost everywhere. At the same time I started noticing antrophy in my forearms/ hands and legs and feet. l thInk my voice hasnt changed much. Can still talk well, drinking liquids is fine, no choking. My legs occationally hurt, but can do 10 mile bikerides. Visit neuro once and he noticed symmetrical brisk patellar reflexes. And he said there could be muscle wasting in those areas I told. Voice and tongue looked fine in his opinion. Strength was fine. Can walk tiptoes and heels. The weird thing is that the atrophy is identical on all four limbs. Can still use all of them, occational wrist pains fex. Also have exessive salivation and throat clearing. Which was treated last year as acid reflux, got bit better after that, but came back few weeks ago, with som heartburns also. The thing that keeps me going now is Opamax 15mg, I have a huge amounts on axiety an fear. Weirdly Opamax helped with twitching on that small dose. Breathing is fine except those anxiety periods. O2 99%.
About a year ago I had an extremely painfull experience with my neck. It became so stiff that I couldnt move it at all whithout causing enormous amount of pain. Got muscle relaxant and pankillers and that got away pretty quickly. After that I had some neck/back pains during the year. Been wondering if that neck episode could have messed the nerves somehow. Or could the voice overuse started a bulbar somehow. Any thoughts? Gonna see neuro in 2 weeks, emg with other labs later. Standard blookwork/vitamins were fine, except folic acid which was very low for my age.
About a year ago I had an extremely painfull experience with my neck. It became so stiff that I couldnt move it at all whithout causing enormous amount of pain. Got muscle relaxant and pankillers and that got away pretty quickly. After that I had some neck/back pains during the year. Been wondering if that neck episode could have messed the nerves somehow. Or could the voice overuse started a bulbar somehow. Any thoughts? Gonna see neuro in 2 weeks, emg with other labs later. Standard blookwork/vitamins were fine, except folic acid which was very low for my age.