- Jun 30, 2008
- Learn about ALS
i just wanted to say i am very sorry. i did not mean to offend anyone here. i joined this forum to seek help cuz im terrified that i have this devistating disease and im very sorry that u guys and girls have to suffer with this and i am praying for u all. i am about to be a father and i need to pull myself together for my child. i was just tryin to seek advice from people who actually have als i thought it would help me i did not mean to offend anyone. im not that smart of a person and am not that good with computers so sorry if my threads where hard to read ill try to make this one better. well just a little bit about myself is i have started this whole cycle about a year ago now and it did not start with the twitching it started with other symptoms. it started with me running to the er 3 even 4 times a week. i was a assistant grocrey manager and a promising carrer. they eventually fired me because i was calling out everyday. everytime i went to work i felt like i was gonna pass out . i could not lift anything cuz i felt i was gonna drop out. i got dizzy i had severe headaces and i could not physically work in my mind they symptoms where so bad i cant even explain what they where like but they where so real and people thought i was makin them up and just did not want to work. then i got another job and i thought things would get better btu they didnt. every time i started to walk i got these real real hot sensations down my back and legs and i felt like if i kept on walking i was going to drop out. then i lost that job. i finally got in to therapy at this point and they kept tellin me it was anxiety and i just could not belive that this was anxiety. my symptoms lasted from the time i woke up to the time i went to sleep. it wasnt i had an anxiety attack i had these symptoms all day long and it drove me nuts i could not keep a job and some weeks i could barley walk or get up without nfeeling like i was gonna drop out like pass out and i was trapped in my mind goin nuts. all i wanted to do was work hard like i use to. my therapist kept tellin me it is anxiety and i just could not belive her. now for the past six months or so i have been having muscle fasciculations and it did not start out this bad. it started out with twitching in my eyes and legs. i did not think much of it but i asked the er dock about it and he said it was nothing to worry about. then i kept tellin my therapist about it and she said it was from my anxiety. then i just delt with them then i moved to tennessee to start over and the twitching has no got worse. its to the point now where i am felling my muscles bubbling and jerking all over but they are real bad in my legs. there is one in my lower left leg that never stops movin its like i dont even feel it half the time ill just look and there it is movin and sometimes its real hard to see but its constantly movin and the one in my uppue right leg twitches violently. you can see it jumpin through my clothes. the ones in my arms i can do somethin with them and boom the muscles in my arms will start jumpin and i can feel them like twitchin and i also get them everywhere else and now im obseed with them. they will not stop they are there all day everyday and now im obseesed with the internet all day i just look for stuff to try to ease my mind but i am convinced i have als and im terrified can bfs be this bad? and can it really show up on a emg this bad? my neuro said he dosent think i have it but why id=s he sending me to an als specialts? im terrified and now i just got a job and i start tonight and im scared to go to workm now cuz i dont want to lose another job. i dont want to go ther and be like im dying and start to feel weird and leave work on my first day. and i am on meds now i have been on them for 5 weeks now but nothing has realkly gotten better but my main question is do thall think i have als? can bfs make fasciculations this bad?