Mattloveday2503
New member
- Joined
- Mar 9, 2021
- Messages
- 1
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- UK
Hello Everybody,
Firstly thanks for listening! I have had a pretty anxious few weeks trying to work out what is wrong with me. Admitidally I have raised a lot of money for MND in the past so I have always been aware of the symptoms of the condition but have overused google in the last few weeks...
Anyway around the start of December I started getting tinnitus in my left ear - had a hearing test and they found a certain frequency hearing loss that couldn’t be explained - ended up seeing and ENT to rule out anything serious and they did an ear MRI and found no issues so just put it down to unfortunate hearing loss and so the tinnitus continues - this is separate to my post but thought it may be relevant
At the end of January this year I started to have episodes of finding talking difficult - my mouth would ache and I would keep mixing words up (almost like I am speaking with a thick tongue)- this continues to happen to today and I feel it is getting worse. Im not slurring as such but keep having to pause or mix my words up - only I am noticing this
Around the start of feb I started to get muscle twitches everywhere and these are becoming more common (worse at rest but noticeable when walking) I like to run and my legs have started to feel almost weak and jittery when I am out
I am scared that all of this is starting to lead to an MND diagnosis. I have spoken with my doctor who said these symptoms are quite vague and we should leave it a few months and then call back if this is still happening. I thought I would reach out to you guys to get an opinion as the thought of waiting for such a long time with my current mental state worries me
Not sure if my profile states it but am about to turn 34
Thanks everybody for any thoughts you have
Matt
X
Firstly thanks for listening! I have had a pretty anxious few weeks trying to work out what is wrong with me. Admitidally I have raised a lot of money for MND in the past so I have always been aware of the symptoms of the condition but have overused google in the last few weeks...
Anyway around the start of December I started getting tinnitus in my left ear - had a hearing test and they found a certain frequency hearing loss that couldn’t be explained - ended up seeing and ENT to rule out anything serious and they did an ear MRI and found no issues so just put it down to unfortunate hearing loss and so the tinnitus continues - this is separate to my post but thought it may be relevant
At the end of January this year I started to have episodes of finding talking difficult - my mouth would ache and I would keep mixing words up (almost like I am speaking with a thick tongue)- this continues to happen to today and I feel it is getting worse. Im not slurring as such but keep having to pause or mix my words up - only I am noticing this
Around the start of feb I started to get muscle twitches everywhere and these are becoming more common (worse at rest but noticeable when walking) I like to run and my legs have started to feel almost weak and jittery when I am out
I am scared that all of this is starting to lead to an MND diagnosis. I have spoken with my doctor who said these symptoms are quite vague and we should leave it a few months and then call back if this is still happening. I thought I would reach out to you guys to get an opinion as the thought of waiting for such a long time with my current mental state worries me
Not sure if my profile states it but am about to turn 34
Thanks everybody for any thoughts you have
Matt
X