carjellis
New member
- Joined
- Jan 8, 2008
- Messages
- 5
- Reason
- Loved one DX
- Country
- US
- State
- In
- City
- Morgantown
My niece Ordinary Girl told me about this support forum after her first post. Since that time I have checked it daily, and sometimes several times a day. I think the support and care you give to others that have family members or friends with this disease is wonderful, and I wish to thank you. It has been a big help to me in dealing with my sisters battle with this horrible disease. Never in my wildest dreams did I think this disease would effect our family, and had no idea really how bad it was.
Dealing with what my sister has gone thru has changed my perspective on things. I will never have the same mind I did in the past when I hear of someone affected with this disease. I had no idea what it was and what a person went thru. What the caregivers go thru, the helplessness. My mind feels numb from it all, I have this knot in my throat all the time. I have to say this is the hardest thing I have ever gone thru in my life, my 2 sisters are my best friends, and loosing Twila will hurt more than I can imagine.
The things I have read has helped me so much, I carry them with me the days I help care for her. I get tired, my hands get tired from rubbing her feet or hands, and I think Im worn out, I cant do any more.....Then I remembr the post telling me to keep on, it wont be for much longer and when it ends it will be forever. I then remember that very soon I wont have my sister's feet to rub and I am refreshed, I can do it even longer.
My sister Twila's battle is almost at an end. I can't see her making it to next weekend, but her will to live is so strong that she keeps proving us, and her friend who is an RN wrong. I know in God's good time he will welcome her running thru Heaven's gates. What she has been thru, I would love to see her on her feet again and running! It will just have to do for now to know that she will be waiting by that gate when I walk in.
What this forum has done for me and Im sure others like me is give me the strength to go on. To put into perspective what our loved ones are going thru and to always, always remember as Cindy often tells us, get mad at the disease not the person.
Thank you all!
Carla
Dealing with what my sister has gone thru has changed my perspective on things. I will never have the same mind I did in the past when I hear of someone affected with this disease. I had no idea what it was and what a person went thru. What the caregivers go thru, the helplessness. My mind feels numb from it all, I have this knot in my throat all the time. I have to say this is the hardest thing I have ever gone thru in my life, my 2 sisters are my best friends, and loosing Twila will hurt more than I can imagine.
The things I have read has helped me so much, I carry them with me the days I help care for her. I get tired, my hands get tired from rubbing her feet or hands, and I think Im worn out, I cant do any more.....Then I remembr the post telling me to keep on, it wont be for much longer and when it ends it will be forever. I then remember that very soon I wont have my sister's feet to rub and I am refreshed, I can do it even longer.
My sister Twila's battle is almost at an end. I can't see her making it to next weekend, but her will to live is so strong that she keeps proving us, and her friend who is an RN wrong. I know in God's good time he will welcome her running thru Heaven's gates. What she has been thru, I would love to see her on her feet again and running! It will just have to do for now to know that she will be waiting by that gate when I walk in.
What this forum has done for me and Im sure others like me is give me the strength to go on. To put into perspective what our loved ones are going thru and to always, always remember as Cindy often tells us, get mad at the disease not the person.
Thank you all!
Carla
