My right arm weakness just became right arm failure

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Jshemnitz

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Feb 19, 2019
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Learn about ALS
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Please do not delete..my post from a week ago got closed (below)

https://www.alsforums.com/forum/do-i-have-als-als/43811-nervous-i-have-als-just-saw-neurologist.html

I previously posted about perceived left and right arm weekeness that my neuromuscular specialist ruled out 11 days ago as not ALS after only a 15 min initial consult visit (my physical therapist previously confirmed left arm weekness after failing her arm stength tests a month ago)

I went back to her for a follow up PT visit this past friday morning and this time I failed both a right arm and left arm stength test. She told me to hold off on any other visits until my doctors figure out what is wrong with me. She said there was no way in hell that my neuromuscular visit that said 5/5 stength in both arms was accurate.

Sure enough I was eating breakfast this morning and my right arm completely failed. I couldn't lift my fork off my plate.

So now I have no clue what to do. Everyone here told me to trust my neuro's opinion from 11 days ago even when I said he only spent 15 min with me. I know for a fact he didn't perform all the tests be said he did but how do i prove that.

I know everyone here will say be would risk losing his license by doing something like that and I agree it would be a really stupid thing for him to risk.

What do I do now?
 
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