- Jan 9, 2020
- DX MND
I had been diagnosed with PMA in December of 2019 and April 3 2020 just got diagnosed with ALS. I’m reaching out for help on how to deal with sudden loss of strength and endurance. After dealing with PMA I used to have good days and bad with strength. But recently lost a lot of strength and I have rested for 3 days and it’s still gone. I’m just shocked to have lost so much in a short time. Is there anything I can do or to get some back? Now I feel like I’m carrying someone around and hanging off my upper body. Losing balance more frequently also. I have been getting set up to start radicava and riluzole at the same time. Has anyone else done both?