Chickenoots
New member
- Joined
- Jul 1, 2020
- Messages
- 7
- Reason
- CALS
- Diagnosis
- 02/2018
- Country
- US
- State
- AR
- City
- Jonesboro
My husband has had PLS for about 2-3 years. He is probably progressing into ALS. Doctors think he needs to be tested for Frontal Temporal Degeneration based upon his behaviors at home. At the very least, he is depressed. He thinks he is fine mentally and the problems are with myself and our 2 daughters 23 & 14). Our daughters and I have been in therapy and under psychiatric care for the last 2 years because his behavior is so awful to us and only us. He is making behavioral and cognitive slip ups with others, but no one catches on; it’s only us who live with him that he directs this behavior towards. I love my husband, but his behavior is killing us. One daughter has developed some self-harm coping mechanisms and ocd behaviors among other things because of the stress of my husband. Another is legally disabled, and her disability is affected by stress (among other things) so she remains constantly sick due to the stress of my husband’s behavior. His PLS diagnosis, while traumatic and I don’t mean to minimize at all, but the ftd/depression is what is killing us. We are in therapy to learn how to cope with him because we know he isn’t going to (or can’t) change, so we have to.
He is not physically abusive, but he is emotionally, mentally, and financially abusive.
We understand some of his behavior must be linked to receiving this awful diagnosis and him trying to cope with
it. We spend an inordinate amount of time trying (and sometimes failing) to use words that put a positive spin on things.
I don’t want to leave my husband. I want to care for him as the PLS/ALS progresses. His social worker and doctors are aware of what is going on at home. My husband believes he is fine and needs no testing or antidepressants and he doesn’t care what anyone tells him. I do not have POA; we have no family to go to. I can’t support the girls and myself so moving out is not an option. We do have a family friend who has seen his behavior towards us. They would let my husband stay with them until he addresses his mental health. But my husband is so stubborn plus seems to have narcissistic tendencies that I foresee him digging in his heels and not budging. Any advice or thoughts would be much appreciated.
He is not physically abusive, but he is emotionally, mentally, and financially abusive.
We understand some of his behavior must be linked to receiving this awful diagnosis and him trying to cope with
it. We spend an inordinate amount of time trying (and sometimes failing) to use words that put a positive spin on things.
I don’t want to leave my husband. I want to care for him as the PLS/ALS progresses. His social worker and doctors are aware of what is going on at home. My husband believes he is fine and needs no testing or antidepressants and he doesn’t care what anyone tells him. I do not have POA; we have no family to go to. I can’t support the girls and myself so moving out is not an option. We do have a family friend who has seen his behavior towards us. They would let my husband stay with them until he addresses his mental health. But my husband is so stubborn plus seems to have narcissistic tendencies that I foresee him digging in his heels and not budging. Any advice or thoughts would be much appreciated.