- Joined
- Nov 12, 2015
- Messages
- 657
- Reason
- CALS
- Diagnosis
- 11/2015
- Country
- US
- State
- CA
- City
- San Diego
My PALS is not in denial about his diagnosis, but he keeps insisting that he "just needs to get well." He has taken countless supplements for decades (well prior to diagnosis with ALS), and is always going on about detoxing his body. Honestly, if these supplements were working to keep him healthy he would not have developed ALS. We've tried various vitamins (all sold by his multi-level marketing "friends"), daily juicing, keto diet, gluten free, protein shakes, etc. Lately he is glued to YouTube watching Mark Manchester. I understand Manchester claims to have reversed his ALS through a combination of supplements, detoxing, gluten free diet, and aromatherapy. My PALS just spent several hundred dollars on the supplements he recommended. He also has a couple of friends who feed this by telling him to continue to "think positively" and telling him he can "beat this."
It probably a weakness of mine, but I become frustrated at what I view as his continued denial of the situation at times. He says I am being negative if I don't believe that he will get well, and asked me if I just want him to give up. I feel that he has put off doing an advanced directive and thinking about any of the future problems and developments I will face. I wish I thought he could get well and didn't feel pressured by this. I wish we could try harder to live in the moment and enjoy what we can now. He seems to want to wait until he "gets well" to do anything.
I don't know if any other CALS have experienced this and whether you have any advice. He won't consider support groups or counseling (not that those things are happening now anyway).
OK done venting. No one else seems to be posting on the CALS forum these days...
V
It probably a weakness of mine, but I become frustrated at what I view as his continued denial of the situation at times. He says I am being negative if I don't believe that he will get well, and asked me if I just want him to give up. I feel that he has put off doing an advanced directive and thinking about any of the future problems and developments I will face. I wish I thought he could get well and didn't feel pressured by this. I wish we could try harder to live in the moment and enjoy what we can now. He seems to want to wait until he "gets well" to do anything.
I don't know if any other CALS have experienced this and whether you have any advice. He won't consider support groups or counseling (not that those things are happening now anyway).
OK done venting. No one else seems to be posting on the CALS forum these days...
V