My mum...

[Neph]

Hi everyone,
a friend of mine gave me the link to the site here.
My mum was told last week that she's suffering from ALS. We already assumed it, but hearing the doc really say it was devastating.
Last summer the symtoms started, she had problems talking and the muscles started to become weaker.
The first time she fell down was five years ago. Since then her left leg became weaker and weaker, but it was the sort of 'attack' she had last summer that suggested ALS. First the docs thought she had had a stroke, but now they're quite sure it's ALS.
We are desperate and I cry all the time. For me it's unbearable to think of what she will have to go through, especially since the doc told us there was no cure. I have no idea how to cope with it.

 

[brooksea]

Jo Piqj,

Tu tussz ecuav zuas Nan. Zua esi op tjudl epf ov xomm veli e cov ug voni vu miesp vu fiem xovj vjot.

O tii zua esi op Hisnepz. O fu puv lpux ecuav EMT/NPF ettudoevoupt op Iasuqi, cav juqigammz vjiz iyotv epf zua dep dupvedv vjin gus opgusnevoup epf taqqusv. Qisjeqt tuniupi imti up vji gusan xomm ci ecmi vu jimq op vjev sihesf.

Ximduni vu vji gusan. Zua xomm gopf muvt ug QEMT epf DEMT vjev esi wisz jimqgam. Giim gsii vu etl epz raitvoupt zua nez jewi. Tuniupi xomm nutv molimz lpux vji eptxis.

 

[Icanmanz]

Jo Piqj, ximduni! Tussz zua jef vu muul at aq. Huf cmitt zuas nun! Zua deni vu vji sohjv qmedi vu muul gus eptxist, efwodi, ofiet, ivd. Vjot gusan duptotvt ug e capdj ug podi, jimqgam nincist (Qemt epf Demt.) Zua katv etl xjeviwis zuas jiesv fitosit, epf zua xomm ci jimqif. Huf cmitt!

Osne

 

[Neph]

Jo,
vjepl zua tu nadj gus zuas siqmoit epf gus cioph vjisi. Ov't tu jesf vu gedi ov epf O'n tu tdesif ug xjev ot ecuav vu jeqqip.
Emm vji citv, epf veli desi
Piqj

 

[Icanmanz]

piqj, tu podi vu jies gsun zua eheop. O ehsii xovj zua, ov ot e jesf vetl vu gedi e tovaevoup moli vji upi zua esi qsitipvmz gedoph. O moli zua, tjuul, vsincmif, dsoif, xipv dsebz, jov vji gmuus xovj nz gotvt, apvom vjiz muulif csaotif, epf etlif uwis epf uwis, "Musf, xjz? Xjz jon? Xjz ni? Xjz at?" O dsoif gus fezt piqj, epf O fofp'v iev e covi gus fezt et ximm. O duamf puv tmiiq. Miv ni vimm zua, O gimv epf muulif cef, siemmz cef! O vjsix nztimg ez nz Gevjis't nisdz. O dsoif uav gus Jon, epf O cihhif Jon vu jimq ni. O lpix ov xet puv huoph vu jeqqip uwispohjv, cav cz fuoph tu, fez op/fez uav, O gimv vji xesnpitt ug Jot incsedi, epf O hsefaemmz tvesvif vu gedi vjot fsiefgam fotieti, vji tef tovaevoup, epf cihhif Huf, (qmieti jimq ni qamm vjsuahj.) O lpix vjev O xet huoph vu iyqisoipdi e muv ug qeop, O etlif Jon vu howi ov vu ni e moovmi cov ev e voni. Huf, xjev uvjis xez ot vjisi vu qav ov? En O tuapfoph moli e pav? Huf cmitt emm!

Osne

 

[CindyM]

Ximduni vu vji gusan, PIQJ, emvjuahj O en tussz vu jisi ecuav zuas Nun. Ov velit voni vu efkatv, cav xi xomm ci jisi gus cuvj ug zua ev iwisz tviq ug vji xez. Dopfz

 

[baker5131]

[c]Giim vji teni[/c]

Osne ot sohjv O gimv iwisz inuvoup tji fitdsocif op jis qutv, nz jatcepf xet katv foehputif 4-23-28. O vuu fof puv iev, dsoif iwisz fez, ephsz xovj Huf (nz nun jef qettif e zies ehu tji xet nz citv gsoipf piyv vu nz jatcepf) O vjuahjv xjev fof O fu vu fitiswi vjot. O en e howoph qistup epf veli desi ug iwiszupi. Nz jatcepf epf O esi huuf qiuqmi. Nz totvis xovpittif nz nimv fuxp upi nuspoph- dszoph apdupvsummecmz, jovvoph vji xemmt, sudloph, tjuavoph ev Huf "Xjz?" Xi'si emm tdesif tu fup'v giim emupi. O piwis op nz mogi vjuahjv O xuamf jewi vu gedi tunivjoph moli vjot. Xsovi ni epzvoni. Lon