weavie
Member
- Joined
- Mar 8, 2014
- Messages
- 28
- Reason
- Lost a loved one
- Diagnosis
- 11/2012
- Country
- AUS
- State
- Victoria
- City
- Geelong
Hello, this is my first post on ALS forums.
My mum has MND.
Her onset is from the bulbar area.
She cannot swallow, her speech is almost impossible to understand, she has to try and spit up oral secretions every waking moment, sleeps most of the day, has been fed via PEG tube for past 12 months, can still walk around the home with a walker and is getting weaker every day.
She was diagnosed 16 months ago, however probably had the disease for almost 12 months before she was officially told the diagnosis.
Her chest sounds quite 'rattly' most of the time now, her cough is weak.
She is sick of spitting up all the time, it is exhausting.
I know each case is different, but does anyone know how much longer I will have with my beautiful, brave mum?
weavie
My mum has MND.
Her onset is from the bulbar area.
She cannot swallow, her speech is almost impossible to understand, she has to try and spit up oral secretions every waking moment, sleeps most of the day, has been fed via PEG tube for past 12 months, can still walk around the home with a walker and is getting weaker every day.
She was diagnosed 16 months ago, however probably had the disease for almost 12 months before she was officially told the diagnosis.
Her chest sounds quite 'rattly' most of the time now, her cough is weak.
She is sick of spitting up all the time, it is exhausting.
I know each case is different, but does anyone know how much longer I will have with my beautiful, brave mum?
weavie