Dr. Ashley Pereira
Member
- Joined
- Jan 29, 2008
- Messages
- 15
- Diagnosis
- 01/2008
- Country
- ca
- State
- ontario
- City
- mississauga
Hello all/
My first post here..
Facts:
My mother is 75 years old(living in Toronto Canada) and was walking(albeit slowly) in Aug 2007. She is now bed-ridden. She had her first infusion of IVIG Dec 14, 2007 and her2nd infusion Jan 15, 2008. There has been no improvement and a rapid deterioration since Oct 2007. Also a general weakening. She has had all the blood tests MRI, EMG, Bone Scan, Cortizone shots, etc. She is hospital at the moment until she feels stronger. At home we now have a caregiver, installed a step lift, obtained easy lift chairs, hospital bed, railings etc.....
She has very little movement in her lower torso and now needs to be moved from side to side in bed although she has all sensory feeling just no power to life her legs while lying in bed against gravity. Also inspite of the IVIg she has a global weakness 30%-40% of her body. She has some problems with bowel movement.
She was confirmed with ALS yesterday.....we are devastated....
Here rapid decline has alarmed her neurologist and we are now comming to grips...not sure what to expect, decisons to be made as she gets worse(feeding tube, breathing, bowel movements, etc.)
She is in hospital for the past two weeks since her 2nd IVIg treatment. We had a glimmer of hope if it was CIDP but now this is a death sentence.
I will come back with specific questions and appreciate your support.
regards
ashley pereira, PEng, MBA, PhD
My first post here..
Facts:
My mother is 75 years old(living in Toronto Canada) and was walking(albeit slowly) in Aug 2007. She is now bed-ridden. She had her first infusion of IVIG Dec 14, 2007 and her2nd infusion Jan 15, 2008. There has been no improvement and a rapid deterioration since Oct 2007. Also a general weakening. She has had all the blood tests MRI, EMG, Bone Scan, Cortizone shots, etc. She is hospital at the moment until she feels stronger. At home we now have a caregiver, installed a step lift, obtained easy lift chairs, hospital bed, railings etc.....
She has very little movement in her lower torso and now needs to be moved from side to side in bed although she has all sensory feeling just no power to life her legs while lying in bed against gravity. Also inspite of the IVIg she has a global weakness 30%-40% of her body. She has some problems with bowel movement.
She was confirmed with ALS yesterday.....we are devastated....
Here rapid decline has alarmed her neurologist and we are now comming to grips...not sure what to expect, decisons to be made as she gets worse(feeding tube, breathing, bowel movements, etc.)
She is in hospital for the past two weeks since her 2nd IVIg treatment. We had a glimmer of hope if it was CIDP but now this is a death sentence.
I will come back with specific questions and appreciate your support.
regards
ashley pereira, PEng, MBA, PhD