My mom's legs

Status
Not open for further replies.

nic01

Member
Joined
Sep 17, 2005
Messages
16
My mom can barely walk, only to hold onto her walker to get her to her chair or potty chair. But now her legs are giving out more and more, and I fear that soon they will not work at all. Then what? We have a sliding board, but I'm just so scared. Everytime I get used to something it changes. I can't support her weight by myself, and neither can my dad. I just don't know what to do next. I hate this disease, it's so unfair. My mom was a very active, vivacious lady, and now all she can do is sit. Ok, enough of my complaining. I know you have all been through the same thing or something similar. Please help me know what I should do and how I should feel when her legs do go.
Thank you all so much
Jennifer
 
Joined
Oct 7, 2005
Messages
11
I am so sorry to hear about your Mom. My Mom also went through that stage. The O.T. got involved and supplied us with a transfer disc that helped get her from point A to point B. She stood on this disc and it rotated or swiveled her. Mom just hung on to us. This worked for awhile. It was great when we had to transfer her into a vehicle or also onto the commode.
I would suggest you contact Home Care in your area. If they are anything like our Home Care they come equipped with all sorts of different gadgets and ideas. I cannot say enough good things about the quality of care they provide. An electric wheel chair has to be one of the greatest inventions for ALS patients. This still gives them some mobility and independence. This was also provided by our Health Care System.
I wish you and your family all the best and our hearts go out to you.
Billie
 

bear2

Member
Joined
Sep 3, 2004
Messages
21
Hi Nic01

The ALS society here just loaned my Dad a rechargeable battery powered lift. We had tracks installed above his bed and also above his reclining chair (also from the ALS society). It is extremely easy to use as a sling is attached to him which is hooked to the lift which is hooked to the ceiling track. Once he is in the air it is so easy to manouver him to either his wheelchair or the commode or his bed. Check with the closest society to your area - it really is amazing what they have to offer. Hope this helps.

bear2
 

Al

Moderator emeritus
Joined
May 25, 2004
Messages
7,960
Reason
PALS
Diagnosis
10/2003
Country
CA
State
On
City
NW of Toronto
Hi Bear2 You haven't been around for a while. Hope everything is going ok for you and your dad. Or as well as can be expected in our situations.
Give us an update when you get a few minutes. We like to know how some of the longer time members are doing. We've gotton quite a few new members since the summer but some of us old troopers are still here.
 

Jerry Story

Active member
Joined
Jul 18, 2005
Messages
54
[quote:83886dd0c1="nic01"]My mom can barely walk, only to hold onto her walker to get her to her chair or potty chair. But now her legs are giving out more and more, and I fear that soon they will not work at all. Then what? We have a sliding board, but I'm just so scared. Everytime I get used to something it changes. I can't support her weight by myself, and neither can my dad. I just don't know what to do next. I hate this disease, it's so unfair. My mom was a very active, vivacious lady, and now all she can do is sit. Ok, enough of my complaining. I know you have all been through the same thing or something similar. Please help me know what I should do and how I should feel when her legs do go.
Thank you all so much
Jennifer[/quote:83886dd0c1]

WARNING!
Avoid MSG and aspartame! Read all my messages about MSG and aspartame.
 
Status
Not open for further replies.
Top