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Cruznsearch

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Hi Folks,
:)

I'm new to the ALS foruim.

I'm trying to find answers, But no miracle....Of course...

It's been 7 months now since my mother had this disease which
none of the neurologists in Seattle can figure out what she really has.

My Mom turned 81 in August.

Her unknown disease began sometime in January 2014 by starting
out loosing her voice.

Neurologist thinks she has 3 possibility diagnosis....

She probably has

--ALS
--PLS
--Parkinson Plus

My sister doesn't understand why an 80 years old woman
has developed ALS, than most people do in the 50's. BUT NOT
in the 80's.

Just recently we got the blood lab results in.

Interesting....

The neurology Dept. drew my Mom's blood in 6 tubes!
4 big tubes, and 2 smaller tubes! For detailed test.

CANCER was ruled out... THAT'S GOOD, NO CANCER..

BUT.....

According to the blood lab results, it indicated that
my Mother's Vitamin B12 is too high.

My sister contacted a nurse for one of the other neurologist,
and that nurse said "People who has ALS have very low B12.
But don't know what disease a person has with a high B12."

Also in the blood lab result....

It indicated the KC is high.

That means Mom's muscle is weak.

So, both the B12 and KC are "Abnormal".

Mom was on medication for her Vitamin B12 up until 2013,
she discontinued, because her B12 was low, at that time.

Mom has been on the breathing machine to expand her lungs.

Mom can drink water and juice with "THICKER" and drink with
a straw.

Mom can hardly walk, NOT only because her left knee, but
the disease she has. And she does fall a few times, but
didn't break her left hip. She also had bump her head, 3 times.
No serious injury, but it could've had been internal brain bleeding.

She looses balance before she falls.

We're all taking care of Mom as much as we can.

BUT there's one thing that's bothering me.....

Whatever happen to that Rabbi in Italy who was CURED
from ALS in 2012 or in 2013?

Brainstorm Cells in Italy did the experimental treatment with
that Rabbi man and he was cured.

I thin it was some kind of stem cell treatment or something.
The treatment they used was "Neru Own" cells.

I read on the internet that there was some success in Italy
for people with ALS or other disease, i wish that we have that
success for my 81 year old Mom.

My 29 years old nephew who's always into science and biology,
says, he believes there is something out there that would cure
Mom's disease, but the U.S. Government wouldn't give it out,
and let other countries has. He thinks our U.S. Government is
controlling populations by letting the people from the 20th Century,
to die without any of the successful treatment. Then they would
for people from this and next generation. That's what he believes.

But about that Rabbi in Italy, was Brainstorm cells given him some kind
of drugs? Or was it a stem cells in his blood?

I don't see any miracle after 7 months gone by, none of the doctors
in Seattle could help Mom with medicines that would match her
blood lab results.
My Mom thinks she was treated like a "Gunny Pig" with the neurologists.

One of my siblings' friend, who's practicing to become a minister,
or a pastor, says "Doctors were told to tell patients that they're
NOT going to get any better!"

My Mom was a nurse, and you know what I'm talking abut?

People who are medical profession, such as Doctors and nurses,
when THEY become a patient, they're the WORST patient, because
they're "stubborn"! NOT listening what they're suppose to do when it
come to better treatment.

So, I am wondering have any of you heard or read IF they're any success
in other countries, that our country's news media doesn't tell?
IF there were success in other countries, what drugs did they use to
cure ALS or other disease.

Neurologists in Seattle couldn't confirm what exactly is the disease
that my Mom has. But only can think of 3 possibility diagnosis...

ALS, PLS, and Parkinson PLUS.
And abnormal b12 and KC.

This is a special MOM, who raised me and protected me, becauuse
i was born with vision and hearing impaired, caused by a birthd defect
when I was a baby.

I've been taking care of my Mom, daily.
And our family are taking care of my Mom.
We do our very best for Mom.

Hope you all understand my situation with my Mom.

Hope all helps for answers.

Thank you.
:(
 

MaxEidswick

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>So, I am wondering have any of you heard or read IF they're any success
in other countries, that our country's news media doesn't tell?
IF there were success in other countries, what drugs did they use to
cure ALS or other disease.

sorry, if there were a few of us would be interested.

I'm sorry for your mom's situation, but your post is all over the map with conspiracy theories, etc.

If the gov't is killing off 20th century folks, it's probably to save the ssa :) ...
 

Atsugi

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What Max said goes double for me.
 

nebrhahe53

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By the way that rabii was in Israel, not Italy, he wasnt cured-he needed repeat treatments to maintain his gains, he had ALS as well as MS I think, and that treatment is in clinical trials in Massachusetts and the Mayo clinic. No one is suppressing it, so I wont even comment on your nephew and his beliefs.
Also old and young people get ALS. And 20th century folks are dying of old age usually-last time I checked there wasnt a cure for that and there isnt one for ALS.

Sorry for your mom, but id have killed to be able to live to 81.
 

Bad Balance

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Wrong forum .....mod please move....thanks!
 

ardalon

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Well, I can say, as far as I know there is no cure , not here in Germany or elsewhere .
 

hjlindley

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That Rabbi was cured by stem cells which are now entering trials in the United States. I know this is frightening but trust me there's no conspiracy. Good luck
 

skipper66

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ALS can strike in the later years. My dad will turn 80 this Thursday. It was 2 years ago in May since his diagnosis.
 

skipper66

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If there was a cure for ALS anywhere on this earth I guarantee my dad would be getting it. Unfortunately, there is not. I do believe they are making alot of progress with stem cells but there is no complete cure yet.
 

GregK

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Interesting:
This new member joined yesterday 9/8, posted at 02:17 on 9/8, and has not logged on since...
 

MaxEidswick

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>This new member joined yesterday 9/8, posted at 02:17 on 9/8, and has not logged on since...

maybe checked as visitor or has alternate id, so it goes ....

still I think he's right, the gov't is trying to fix the ssa by killing us off .... seems like fluoride would be faster than ALS ... maybe it's a neuro conspiracy for job security ... must give this more thought.
 

nebrhahe53

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yeah the ALS cure is kept in the same building with the Roswell aliens...
 

affected

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lala land
Neil is that where they held Paul too?
 
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